{
  "abstract": "The General Data Protection Regulation (GDPR) provides a robust framework for regulating individual data collection, use, reuse, and storage across Europe, but offers limited safeguards for collective rights, such as those of Indigenous peoples. Here, we examine specific ethical guidelines and governance principles relevant to the Sámi population, and those general for Indigenous peoples, and offer recommendations for best practices in health research.\n\nIn this Perspective, Susanna Siri and colleagues examine ethical guidelines and governance principles relevant to the collection, use, reuse and storage of data for the Sámi population and Indigenous peoples, and provide recommendations on best practice.",
  "abstract_shown": true,
  "affiliations": [
    "Centre for Sami Health Research, Department of Community Medicine, Faculty of Health Sciences, UiT The Arctic University of Norway, Tromsø, Norway",
    "Várdduo- Centre for Sámi Research, Faculty of Arts and Humanities, Umeå University, Umeå, Sweden",
    "Department of Odontology, Faculty of Medicine, Umeå University, Umeå, Sweden"
  ],
  "article_type": "Perspective",
  "arxiv": null,
  "author_total": 3,
  "authors": [
    {
      "affs": [
        0
      ],
      "name": "Susanna Ragnhild Andersdatter Siri"
    },
    {
      "affs": [
        1
      ],
      "name": "Christina Storm Mienna"
    },
    {
      "affs": [
        2
      ],
      "name": "Per Axelsson"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/04jd0bgzfbngs.bib",
  "cited_by": 0,
  "doi": "10.1371/journal.pmed.1005250",
  "fulltext_url": "https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1005250",
  "id": "04jd0bgzfbngs",
  "issns": [
    "1549-1676"
  ],
  "landing_url": "https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1005250",
  "language": null,
  "licence": "CC-BY-4.0",
  "licence_label": "CC BY 4.0",
  "licence_source": "journal",
  "licence_url": "https://creativecommons.org/licenses/by/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "openalex",
      "3306|Indigenous Health, Education, and Rights"
    ],
    [
      "plos",
      "/Biology and life sciences/Organisms/Eukaryota/Animals/Vertebrates/Amniotes/Mammals/Ruminants/Reindeer"
    ],
    [
      "plos",
      "/Biology and life sciences/Zoology/Animals/Vertebrates/Amniotes/Mammals/Ruminants/Reindeer"
    ],
    [
      "plos",
      "/Computer and information sciences/Data management"
    ],
    [
      "plos",
      "/Computer and information sciences/Data management/Data processing"
    ],
    [
      "plos",
      "/People and places/Geographical locations/Europe/European Union/Finland"
    ],
    [
      "plos",
      "/People and places/Geographical locations/Europe/European Union/Sweden"
    ],
    [
      "plos",
      "/People and places/Geographical locations/Europe/Norway"
    ],
    [
      "plos",
      "/Science policy/Research integrity/Research ethics"
    ],
    [
      "plos",
      "/Social sciences/Sociology/Culture"
    ]
  ],
  "openalex": "W7213020974",
  "pdf_url": "https://journals.plos.org/plosmedicine/article/file?id=10.1371/journal.pmed.1005250&type=printable",
  "pmcid": null,
  "pmid": null,
  "published": "2026-09-14",
  "publisher": "Public Library of Science",
  "ris": "https://research.draconitic.com/paper/04jd0bgzfbngs.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T12:17:50Z",
      "native_id": "10.1371/journal.pmed.1005250",
      "source": "plos",
      "url": "https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1005250"
    }
  ],
  "subjects": [
    {
      "field": "biology",
      "origin": "plos:zoology",
      "subfield": "zoology-behaviour"
    }
  ],
  "title": "Collective interests, health research ethics and data governance for Indigenous Sámi populations",
  "title_text": "Collective interests, health research ethics and data governance for Indigenous Sámi populations",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T12:17:50Z",
  "url": "https://research.draconitic.com/paper/04jd0bgzfbngs",
  "venue": "PLOS Medicine",
  "versions": []
}