{
  "abstract": "Introduction\n\nAs dementia prevalence rises, reliance on carers increases substantially, yet little is known about how carers experience, interpret, and redefine dementia. This qualitative study explored how family and professional carers in the United Kingdom (UK) make sense of dementia, focusing on the meanings they ascribe and how stigma shapes care practices, trajectories, and preferences within cultural, moral, and structural contexts.Methods\n\nPurposive sampling recruited 12 family carers and three professional carers across the United Kingdom, and data were analyzed using inductive reflexive thematic analysis. The perspectives of professional carers were included as contextual insights into dementia caregiving experiences rather than for direct comparison with family carers.Results\n\nCarers described dementia caregiving as a totalising, unpredictable process requiring ongoing reconfiguration of daily life, family roles, and care expectations. Disclosure, reasoning with symptoms, and care-setting decisions were shaped by cultural, moral, and structural factors, balancing practical needs, autonomy, public responses, and emotional wellbeing.Discussion\n\nRecognizing the dynamic processes of dementia caregiving within the United Kingdom care context underscores the need for iterative support systems that promote the resilience and quality of life for carers and people with dementia.",
  "abstract_shown": true,
  "affiliations": [
    "Psychological Medicine Institute of Psychiatry Psychology & Neuroscience King's College London London UK.",
    "Department of Japanese Studies National University of Singapore Singapore Singapore.",
    "Department of War Studies Faculty of Social Science & Public Policy King's College London London UK.",
    "South London and Maudsley NHS Foundation Trust London UK."
  ],
  "article_type": "research article",
  "arxiv": null,
  "author_total": 4,
  "authors": [
    {
      "affs": [
        0,
        1
      ],
      "name": "Anna Tjin",
      "orcid": "0000-0002-9927-871X"
    },
    {
      "affs": [
        2
      ],
      "name": "I Made Pasek Saradahtam Bendesa"
    },
    {
      "affs": [
        0,
        3
      ],
      "name": "Robert Stewart"
    },
    {
      "affs": [
        1
      ],
      "name": "Thang Leng Leng"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/2sy6gk10vm1gz.bib",
  "cited_by": 0,
  "doi": "10.1002/dad2.70521",
  "fulltext_url": "https://europepmc.org/articles/PMC13687587",
  "id": "2sy6gk10vm1gz",
  "issns": [
    "2352-8729"
  ],
  "landing_url": "https://europepmc.org/article/MED/42923468",
  "language": "eng",
  "licence": "CC-BY",
  "licence_label": "CC BY",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "openalex",
      "2738|Dementia and Cognitive Impairment Research"
    ]
  ],
  "openalex": "W7223176254",
  "pdf_url": "https://europepmc.org/articles/PMC13687587?pdf=render",
  "pmcid": "PMC13687587",
  "pmid": "42923468",
  "published": "2026-10-21",
  "publisher": null,
  "ris": "https://research.draconitic.com/paper/2sy6gk10vm1gz.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T12:20:33Z",
      "native_id": "MED:42923468",
      "source": "europepmc",
      "url": "https://europepmc.org/article/MED/42923468"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "openalex:2738|Dementia and Cognitive Impairment Research",
      "subfield": "psychiatry"
    }
  ],
  "title": "Redefining the meaning of dementia: A qualitative study of meaning, stigma, and care experiences among family and professional carers.",
  "title_text": "Redefining the meaning of dementia: A qualitative study of meaning, stigma, and care experiences among family and professional carers.",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T12:20:33Z",
  "url": "https://research.draconitic.com/paper/2sy6gk10vm1gz",
  "venue": "Alzheimer's & dementia (Amsterdam, Netherlands)",
  "versions": []
}