{
  "abstract": "Objective: Health literacy reflects the ability to find, understand, evaluate, and use information to make health-related decisions. We evaluated sociodemographic and disease factors associated with health literacy among people with SSc.\n\nMethods: Participants with SSc in the Scleroderma Patient-centred Intervention Network Cohort completed the Health Literacy Scale19 − 12 Item Questionnaire from February to November 2025. Multivariable linear regression was used to assess associations of sociodemographic and disease characteristics with health literacy.\n\nResults: The 1019 participants were mainly female (N = 898, 88%) and White (N = 850, 84%). Mean (SD) years of education was 15.5 (3.9). Most had limited cutaneous SSc (N = 669, 66%). Mean health literacy total score was 69.7; 438 (43%) participants had excellent or sufficient and 581 (57%) had problematic or inadequate health literacy. Education (1.63 points per 5 years, 95% CI 0.25–3.01) was significantly associated with higher health literacy scores. Compared with the United States, participants from Canada (−4.98 points, 95% CI −7.99 to −1.97), the United Kingdom (−7.79 points, 95% CI −12.03 to −3.55), France (−6.05 points, 95% CI −8.84 to −3.27), and Australia, Mexico or Spain (−7.02 points, 95% CI −12.39 to −1.66) had significantly lower health literacy scores. Age, gender, race or ethnicity, marital status, time since first non-Raynaud symptom onset and disease subtype were not associated with health literacy.\n\nConclusion: The association between health literacy and education was small. Differences between countries may reflect self-evaluation tendencies. More work is needed to better understand health literacy measurement.",
  "abstract_shown": true,
  "affiliations": [],
  "article_type": "research article",
  "arxiv": null,
  "author_total": 115,
  "authors": [
    {
      "name": "Claire Adams"
    },
    {
      "name": "Marie-Eve Carrier"
    },
    {
      "name": "Meira Golberg"
    },
    {
      "name": "Natalie Co"
    },
    {
      "name": "Elsa-Lynn Nassar"
    },
    {
      "name": "Linda Kwakkenbos"
    },
    {
      "name": "Susan J Bartlett",
      "orcid": "0000-0001-9755-2490"
    },
    {
      "name": "Catherine Fortuné"
    },
    {
      "name": "Amy Gietzen"
    },
    {
      "name": "Geneviève Guillot"
    },
    {
      "name": "Amanda Lawrie-Jones"
    },
    {
      "name": "Vanessa L Malcarne"
    },
    {
      "name": "Maureen D Mayes"
    },
    {
      "name": "Michelle Richard"
    },
    {
      "name": "Luc Mouthon",
      "orcid": "0000-0002-9838-246X"
    },
    {
      "name": "Andrea Benedetti",
      "orcid": "0000-0002-8314-9497"
    },
    {
      "name": "Brett D Thombs",
      "orcid": "0000-0002-5644-8432"
    },
    {
      "name": "Benjamin Chaigne"
    },
    {
      "name": "Benjamin Chaigne"
    },
    {
      "name": "Karen Gottesman"
    },
    {
      "name": "Sabrina Hoa"
    },
    {
      "name": "Marie Hudson"
    },
    {
      "name": "Laura K Hummers"
    },
    {
      "name": "Yanne Perriault"
    },
    {
      "name": "Danielle Rice"
    },
    {
      "name": "Maureen Sauvé"
    },
    {
      "name": "James Stempel"
    },
    {
      "name": "Robyn K Wojeck"
    },
    {
      "name": "Christian Agard"
    },
    {
      "name": "Laurent Alric"
    },
    {
      "name": "Marc André"
    },
    {
      "name": "Floryan Beaslay"
    },
    {
      "name": "Elana J Bernstein"
    },
    {
      "name": "Sabine Berthier"
    },
    {
      "name": "Lyne Bissonnette"
    },
    {
      "name": "Sophie Blaise"
    },
    {
      "name": "Alessandra Bruns"
    },
    {
      "name": "Carlotta Cacciatore"
    },
    {
      "name": "Patricia Carreira"
    },
    {
      "name": "Marion Casadevall"
    },
    {
      "name": "Lorinda Chung"
    },
    {
      "name": "Benjamin Crichi"
    },
    {
      "name": "Thylbert Deltombe"
    },
    {
      "name": "Christopher P Denton"
    },
    {
      "name": "Tannvir Desroche"
    },
    {
      "name": "Robyn Domsic"
    },
    {
      "name": "James V Dunne"
    },
    {
      "name": "Bertrand Dunogue"
    },
    {
      "name": "Regina Fare"
    },
    {
      "name": "Dominique Farge"
    },
    {
      "name": "Paul R Fortin"
    },
    {
      "name": "Tracy Frech"
    },
    {
      "name": "Loraine Gauzère"
    },
    {
      "name": "Anne Gerber"
    },
    {
      "name": "Jessica K Gordon"
    },
    {
      "name": "Brigitte Granel"
    },
    {
      "name": "Aurélien Guffroy"
    },
    {
      "name": "Geneviève Gyger"
    },
    {
      "name": "Eric Hachulla"
    },
    {
      "name": "Daphna Harel"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/2zdhpbcghpxbs.bib",
  "cited_by": 0,
  "doi": "10.1093/rheumatology/keag558",
  "fulltext_url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC13711234/",
  "id": "2zdhpbcghpxbs",
  "issns": [
    "1462-0324",
    "1462-0332"
  ],
  "landing_url": "https://doi.org/10.1093/rheumatology/keag558",
  "language": "en",
  "licence": "CC-BY-4.0",
  "licence_label": "CC BY 4.0",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "heading",
      "AcademicSubjects/MED00360"
    ],
    [
      "heading",
      "Original Article"
    ],
    [
      "openalex",
      "3600|Health Literacy and Information Accessibility"
    ]
  ],
  "openalex": "W7222972911",
  "pdf_url": null,
  "pmcid": "PMC13711234",
  "pmid": "42895293",
  "published": "2026-10-19",
  "publisher": "Oxford University Press",
  "ris": "https://research.draconitic.com/paper/2zdhpbcghpxbs.ris",
  "sources": [
    {
      "first_seen": "2026-10-31T12:22:03Z",
      "native_id": "PMC13711234",
      "source": "pmc",
      "url": "https://doi.org/10.1093/rheumatology/keag558"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "journal-openalex:F27",
      "subfield": "general"
    }
  ],
  "title": "Health literacy among people with systemic sclerosis: a Scleroderma Patient-Centred Intervention Network (SPIN) Cohort cross-sectional study",
  "title_text": "Health literacy among people with systemic sclerosis: a Scleroderma Patient-Centred Intervention Network (SPIN) Cohort cross-sectional study",
  "type": "peer-reviewed",
  "updated_at": "2026-10-31T12:22:03Z",
  "url": "https://research.draconitic.com/paper/2zdhpbcghpxbs",
  "venue": "Rheumatology (Oxford, England)",
  "versions": []
}