{
  "abstract": "Background: Quality of life is increasingly recognised as a central outcome in cancer care, as well as an indicator of cancer system performance alongside traditional metrics such as cancer survival rates. The EUonQoL project has developed a validated, person-centred toolkit, the EUonQoL-Kit, to enable standardised quality of life measurement across national healthcare institutions, research and cancer centres in Europe. As the project moves towards completion, ensuring its long-term sustainability and embedding in EU and national policy frameworks becomes a priority.\n\nMethods: A strategic action plan for policy outreach and sustainability was developed, informed by the project’s scientific outputs and pilot results. Actions are structured around three levels: EU institutions, national policymakers, and patient and cancer communities. Engagement activities include targeted meetings with key European and international stakeholders, advocacy towards relevant policy frameworks, and multi-stakeholder coalition building.\n\nResults: EU-level outreach has been directed at the European Commission (DG RTD and JRC), OECD, the European Network of Cancer Registries, and EU-funded cancer initiatives, with the goal of integrating the EUonQoL-Kit into ongoing cancer surveillance frameworks. National engagement is targeting countries currently revising National Cancer Control Plans. Community-level actions are empowering patient organisations to advocate for quality of life measurement as a standard of cancer care.\n\nConclusions: A coordinated policy outreach strategy is essential to ensure that the EUonQoL-Kit moves from a research tool to a sustained European infrastructure for quality of life monitoring. Embedding the Kit in existing EU and national policy frameworks offers a concrete pathway to improve person-centred cancer policies across Europe.",
  "abstract_shown": true,
  "affiliations": [],
  "article_type": "abstract",
  "arxiv": null,
  "author_total": 2,
  "authors": [
    {
      "name": "A Eni"
    },
    {
      "name": "N Couespel"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/55waxs6n3bxs2.bib",
  "cited_by": 0,
  "doi": "10.1093/eurpub/ckag169.150",
  "fulltext_url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC13697731/",
  "id": "55waxs6n3bxs2",
  "issns": [
    "1101-1262",
    "1464-360X"
  ],
  "landing_url": "https://doi.org/10.1093/eurpub/ckag169.150",
  "language": "en",
  "licence": "CC-BY-NC-4.0",
  "licence_label": "CC BY-NC 4.0",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by-nc/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "heading",
      "3. PARALLEL PROGRAMME"
    ],
    [
      "heading",
      "AcademicSubjects/MED00860"
    ],
    [
      "heading",
      "AcademicSubjects/SOC01210"
    ],
    [
      "heading",
      "AcademicSubjects/SOC02610"
    ],
    [
      "openalex",
      "2730|Cancer survivorship and care"
    ]
  ],
  "openalex": "W7223691290",
  "pdf_url": "https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13697731/pdf/?tool=EBI",
  "pmcid": "PMC13697731",
  "pmid": null,
  "published": "2026-10-01",
  "publisher": "Oxford University Press",
  "ris": "https://research.draconitic.com/paper/55waxs6n3bxs2.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T12:18:44Z",
      "native_id": "PMC13697731",
      "source": "pmc",
      "url": "https://doi.org/10.1093/eurpub/ckag169.150"
    },
    {
      "first_seen": "2026-10-30T12:21:45Z",
      "native_id": "PMC:PMC13697731",
      "source": "europepmc",
      "url": "https://europepmc.org/article/PMC/PMC13697731"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "openalex:2730|Cancer survivorship and care",
      "subfield": "oncology"
    }
  ],
  "title": "Sustainability of the EUonQoL-Kit: embedding cancer quality of life measurement in European policy",
  "title_text": "Sustainability of the EUonQoL-Kit: embedding cancer quality of life measurement in European policy",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T12:34:43Z",
  "url": "https://research.draconitic.com/paper/55waxs6n3bxs2",
  "venue": "The European Journal of Public Health",
  "versions": []
}