{
  "abstract": "Objectives\n\nTo explore needs among persons with advanced COPD and informal caregivers, and to explore how palliative care can address those needs.Background\n\nCOPD is a common, progressive disease affecting lung function and represents a leading cause of death. Advanced COPD is associated with a high symptom burden and poor quality of life. Persons with advanced COPD may benefit from palliative care, but its use among persons with COPD remains limited, also in Germany.Methods\n\nA qualitative, multi-perspective interview study was conducted with persons suffering from advanced COPD, informal caregivers, and formal caregivers (general practitioners, pulmonologists, and palliative care physicians). A total of 53 interviews were analysed following structuring (Kuckartz') as well as latent content analysis methods using MAXQDA.Results\n\nKey needs were identified in the following domains (1) management of dyspnoea and anxiety, (2) home-based healthcare, (3) emergency planning and support, (4) psychosocial care, (5) organisational support, and (6) timely information about COPD and palliative care. Persons who had previously received PC reported various needs met in the first five areas.Conclusions\n\nPersons with advanced COPD and their informal caregivers reported numerous needs. Persons receiving palliative care reported relief from various needs. Timely information about COPD's progression and palliative care could increase acceptance and thus use of palliative care among these persons and could consequently reduce or curtail the burden of living with advanced COPD.",
  "abstract_shown": true,
  "affiliations": [
    "Institute for Occupational, Social, and Environmental Medicine, Centre for Health and Society, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany. kira.schmidt.stiedenroth@uni-duesseldorf.de.",
    "Institute for Occupational, Social, and Environmental Medicine, Centre for Health and Society, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.",
    "Institute of General Practice and Primary Care (iamag), Chair of General Practice II and Patient-Centredness in Primary Care, Witten/Herdecke University, Witten, Germany.",
    "Clinic for Cardiology, Pulmonology & Angiology, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.",
    "Interdisciplinary Centre of Palliative Care, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.",
    "Institute for eHealth and Healthcare Management, University of applied science, Flensburg, Germany.",
    "Clinic of Pneumology and Allergology, Center for Sleep Medicine and Respiratory Care, Institute of Pneumology, Bethanien Hospital, University of Cologne, Solingen, Germany.",
    "Department of Anaesthesiology, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany."
  ],
  "article_type": "research article",
  "arxiv": null,
  "author_total": 13,
  "authors": [
    {
      "affs": [
        0
      ],
      "name": "Kira Schmidt-Stiedenroth"
    },
    {
      "affs": [
        1
      ],
      "name": "Julia Salandi"
    },
    {
      "affs": [
        2
      ],
      "name": "Alexandra Schmidt"
    },
    {
      "affs": [
        3
      ],
      "name": "Balam Er Dedekarginoglu"
    },
    {
      "affs": [
        4
      ],
      "name": "Stefanie Paniczek"
    },
    {
      "affs": [
        4,
        5
      ],
      "name": "Manuela Schallenburger"
    },
    {
      "affs": [
        2
      ],
      "name": "Anette Scholz"
    },
    {
      "affs": [
        4
      ],
      "name": "Jacqueline Schwartz"
    },
    {
      "affs": [
        3
      ],
      "name": "Kathrin Fricke"
    },
    {
      "affs": [
        6
      ],
      "name": "Stefanie Keymel"
    },
    {
      "affs": [
        2
      ],
      "name": "Achim Mortsiefer"
    },
    {
      "affs": [
        4,
        7
      ],
      "name": "Martin Neukirchen"
    },
    {
      "affs": [
        1
      ],
      "name": "Adrian Loerbroks"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/5c0t98exm1dqr.bib",
  "cited_by": 0,
  "doi": "10.1186/s12890-026-04828-5",
  "fulltext_url": "https://europepmc.org/articles/PMC13681904",
  "id": "5c0t98exm1dqr",
  "issns": [
    "1471-2466"
  ],
  "landing_url": "https://europepmc.org/article/MED/42897575",
  "language": "eng",
  "licence": "CC-BY",
  "licence_label": "CC BY",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "lcc",
      "RC705-779"
    ],
    [
      "openalex",
      "2739|Palliative Care and End-of-Life Issues"
    ]
  ],
  "openalex": "W7222941721",
  "pdf_url": "https://europepmc.org/articles/PMC13681904?pdf=render",
  "pmcid": "PMC13681904",
  "pmid": "42897575",
  "published": "2026-10-19",
  "publisher": "BMC",
  "ris": "https://research.draconitic.com/paper/5c0t98exm1dqr.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T12:19:32Z",
      "native_id": "MED:42897575",
      "source": "europepmc",
      "url": "https://europepmc.org/article/MED/42897575"
    },
    {
      "first_seen": "2026-10-30T13:45:39Z",
      "native_id": "f3a4d776e722426287c3b6f847597830",
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      "url": "https://doi.org/10.1186/s12890-026-04828-5"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "openalex:2739|Palliative Care and End-of-Life Issues",
      "subfield": "epidemiology-public-health"
    }
  ],
  "title": "Needs among persons with advanced COPD and their informal caregivers: a multi-perspective qualitative study focusing on the potential role of palliative care.",
  "title_text": "Needs among persons with advanced COPD and their informal caregivers: a multi-perspective qualitative study focusing on the potential role of palliative care.",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T13:45:39Z",
  "url": "https://research.draconitic.com/paper/5c0t98exm1dqr",
  "venue": "BMC pulmonary medicine",
  "versions": []
}