{
  "abstract": "Purpose: Children with chronic health conditions such as sickle cell disease (SCD) often have a reduced quality of life, with consequences for their families. This study examined predictors of family quality of life (FQOL) among Omani families of children with SCD.\n\nMethods: In this cross-sectional study, a convenience sample of 103 mothers completed validated measures of maternal perceived stress and FQOL. Multiple regression analyses examined the effects of individual- and family-level factors on FQOL, with family income and family structure entered as categorical variables.\n\nResults: Maternal perceived stress (β=–.46, p<.001) and family structure (β=–.212, p=.023) significantly predicted FQOL. FQOL was higher in nuclear families (mean=3.63, standard deviation=0.39) than in other family types (extended, single-parent, and polygamous) (mean=3.34, standard deviation=0.47; t(101)=–3.50, p=.001). The overall regression model explained 30.9% of the variance in family quality of life (R²=.309).\n\nConclusion: Maternal perceived stress and family composition both were significantly associated with FQOL. These findings support the need for culturally responsive, family-centered interventions and can inform clinical and policy strategies to improve family functioning and overall well-being among families of children with SCD.",
  "abstract_shown": true,
  "affiliations": [
    "Assistant Professor, College of Nursing, Sultan Qaboos University, Muscat, Oman"
  ],
  "article_type": "research article",
  "arxiv": null,
  "author_total": 1,
  "authors": [
    {
      "affs": [
        0
      ],
      "name": "Wafa Al Jabri",
      "orcid": "0009-0003-3566-3277"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/77nr8cmpjbm6j.bib",
  "cited_by": 0,
  "doi": "10.4094/chnr.2026.007",
  "fulltext_url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC13732150/",
  "id": "77nr8cmpjbm6j",
  "issns": [
    "2287-9110",
    "2287-9129"
  ],
  "landing_url": "https://doi.org/10.4094/chnr.2026.007",
  "language": "en",
  "licence": "CC-BY-NC-ND-4.0",
  "licence_label": "CC BY-NC-ND 4.0",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by-nc-nd/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "heading",
      "Original Article"
    ],
    [
      "openalex",
      "2716|Hemoglobinopathies and Related Disorders"
    ]
  ],
  "openalex": "W7224672412",
  "pdf_url": null,
  "pmcid": "PMC13732150",
  "pmid": "42956812",
  "published": "2026-10-31",
  "publisher": "Korean Academy of Child Health Nursing",
  "ris": "https://research.draconitic.com/paper/77nr8cmpjbm6j.ris",
  "sources": [
    {
      "first_seen": "2026-11-08T12:22:11Z",
      "native_id": "PMC13732150",
      "source": "pmc",
      "url": "https://doi.org/10.4094/chnr.2026.007"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "openalex:2716|Hemoglobinopathies and Related Disorders",
      "subfield": "human-genetics"
    }
  ],
  "title": "Predictors of family quality of life among Omani families of children with sickle cell disease: maternal stress and family structure in a cross-sectional study",
  "title_text": "Predictors of family quality of life among Omani families of children with sickle cell disease: maternal stress and family structure in a cross-sectional study",
  "type": "peer-reviewed",
  "updated_at": "2026-11-08T12:22:11Z",
  "url": "https://research.draconitic.com/paper/77nr8cmpjbm6j",
  "venue": "Child Health Nursing Research",
  "versions": []
}