{
  "abstract": "Objectives\n\nTo examine how consumers are involved in pre-clinical musculoskeletal research and explore their perspectives on involvement.Methods\n\nA cross-sectional online survey was conducted to explore consumer involvement in pre-clinical musculoskeletal research and perspectives on involvement. Eligible participants were individuals with lived experience of musculoskeletal conditions or their carers, recruited via consumer networks in Australia and New Zealand. Quantitative and qualitative data were collected using structured and open-ended questions. Descriptive statistics and inductive content analysis were used to analyse responses.Results\n\nA total of 166 participants (n = 150 consumers, n = 16 carers) with lived experience of a musculoskeletal condition completed the survey. Forty percent of participants had prior involvement in pre-clinical research, primarily as study participants. Most consumers (77%) believed their involvement should be a requirement and identified clear expectations (96%), training (67%), reimbursement (61%) and buddying with researchers (60%) as essential supports. Almost one-third (32%) reported that the support required would vary depending on their role. Consumers rated their input as very important for identifying research priorities (64%) and ensuring research is clinically relevant (59%). Almost 40% did not agree that they lacked necessary training to contribute to pre-clinical research and showed little interest in applying for research funding (50%), recruiting participants (38%) or writing/reviewing publications (36%). Those with prior research experience reported greater confidence in their skills and their input's relevance.Conclusion\n\nConsumers are willing and perceive that they can contribute meaningfully to pre-clinical research when appropriately supported. Aligning involvement opportunities with consumer interests and providing tailored support ensures impactful partnerships.",
  "abstract_shown": true,
  "affiliations": [
    "RECOVER Injury Research Centre, The University of Queensland, Herston, Queensland, Australia.",
    "Centre for Innovation in Pain and Health Research (CIPHeR), The University of Queensland, St Lucia, Queensland, Australia.",
    "School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, Queensland, Australia.",
    "UQ Clinical Trials Capability, The University of Queensland, Herston, Queensland, Australia.",
    "Surgical Treatment and Rehabilitation Service (STARS) Education and Research Alliance, Metro North Health and The University of Queensland, Herston, Queensland, Australia.",
    "Raymond Purves Bone and Joint Research Laboratories, Kolling Institute, St. Leonards, New South Wales, Australia.",
    "Sydney Musculoskeletal Health, Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia.",
    "Institute of Bone and Joint Research, Northern Sydney Local Health District, St. Leonards, New South Wales, Australia.",
    "Australia and New Zealand Musculoskeletal Clinical Trials Network (ANZMUSC) Basic Science Special Interest Group, Melbourne, Victoria, Australia.",
    "Australia and New Zealand Musculoskeletal Clinical Trials Network (ANZMUSC) Consumer Advisory Group, Melbourne, Victoria, Australia.",
    "Australia and New Zealand Musculoskeletal Clinical Trials Network (ANZMUSC) Executive, Melbourne, Victoria, Australia.",
    "Ankylosing Spondylitis Victoria Inc. Consumer Organisation, Melbourne, Victoria, Australia."
  ],
  "article_type": "research article",
  "arxiv": null,
  "author_total": 10,
  "authors": [
    {
      "affs": [
        0,
        1
      ],
      "name": "Megan H Ross",
      "orcid": "0000-0001-5467-3559"
    },
    {
      "affs": [
        1,
        2
      ],
      "name": "Camille Maeva Thomas",
      "orcid": "0009-0004-5002-7639"
    },
    {
      "affs": [
        3
      ],
      "name": "Bec Jenkinson",
      "orcid": "0000-0001-6723-8898"
    },
    {
      "affs": [
        2,
        4
      ],
      "name": "Emmah Doig",
      "orcid": "0000-0002-7020-053X"
    },
    {
      "affs": [
        5,
        6,
        7,
        8
      ],
      "name": "Christopher B Little",
      "orcid": "0000-0002-0353-7634"
    },
    {
      "affs": [
        9,
        10,
        11
      ],
      "name": "Annette Annie McPherson"
    },
    {
      "affs": [
        8,
        9
      ],
      "name": "Christine Beanland"
    },
    {
      "affs": [
        1,
        2,
        8,
        10
      ],
      "name": "Paul Hodges",
      "orcid": "0000-0002-1206-9107"
    },
    {
      "name": "Australia and New Zealand Musculoskeletal Clinical Trials Network (ANZMUSC) Basic Science Special Interest Group"
    },
    {
      "name": "Australia and New Zealand Musculoskeletal Clinical Trials Network (ANZMUSC) Basic Science Special Interest Group"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/8m7dhvbkq2gy8.bib",
  "cited_by": 0,
  "doi": "10.1093/rap/rkag115",
  "fulltext_url": "https://europepmc.org/articles/PMC13652147",
  "id": "8m7dhvbkq2gy8",
  "issns": [
    "2514-1775"
  ],
  "landing_url": "https://europepmc.org/article/MED/42857304",
  "language": "eng",
  "licence": "CC-BY-NC",
  "licence_label": "CC BY-NC",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by-nc/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "openalex",
      "3600|Mental Health and Patient Involvement"
    ]
  ],
  "openalex": "W7214427876",
  "pdf_url": "https://europepmc.org/articles/PMC13652147?pdf=render",
  "pmcid": "PMC13652147",
  "pmid": "42857304",
  "published": "2026-09-25",
  "publisher": null,
  "ris": "https://research.draconitic.com/paper/8m7dhvbkq2gy8.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T12:19:16Z",
      "native_id": "MED:42857304",
      "source": "europepmc",
      "url": "https://europepmc.org/article/MED/42857304"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "journal-openalex:F27",
      "subfield": "general"
    }
  ],
  "title": "Perspectives of consumer involvement in pre-clinical musculoskeletal research: a cross-sectional survey of consumers and community members.",
  "title_text": "Perspectives of consumer involvement in pre-clinical musculoskeletal research: a cross-sectional survey of consumers and community members.",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T12:19:16Z",
  "url": "https://research.draconitic.com/paper/8m7dhvbkq2gy8",
  "venue": "Rheumatology advances in practice",
  "versions": []
}