{
  "abstract": "Background\n\nThe increasing demand for access to general practice data for research and policy development presents ethical challenges for Australian general practitioners (GPs), particularly around patient consent, privacy, and trust. As frontline custodians of patient information, GPs must navigate the tension between supporting public benefit and upholding their professional obligations to confidentiality and autonomy.Methods\n\nThis qualitative study involved interviews with 19 Australian GPs who reported limited experience with secondary use of general practice data. Participants were recruited via professional networks and interviewed using open-ended questions informed by prior community jury recommendations. Thematic analysis was conducted using NVivo 12, with an ethical lens applied to identify key themes related to trust, consent, and data governance.Results\n\nGPs expressed broad support for using general practice data in research but emphasised the centrality of trust in the doctor-patient relationship. Most participants preferred an opt-in consent model, citing transparency and respect for patient autonomy. Concerns were raised about privacy breaches, re-identification risks, and the ethical implications of remuneration. Organisational constraints, such as time pressures and limited decision-making authority within practices, were identified as barriers to implementing ethical data-sharing practices.Conclusion\n\nAustralian GPs are pivotal in shaping ethical and effective models for data sharing in general practice. However, substantial policy, educational, and ethical work is needed to address their concerns. Building trust, ensuring transparency, and respecting patient autonomy are essential to securing GP support for routine data collection. A collaborative approach involving government, community, and general practice stakeholders is necessary to develop acceptable and sustainable data-sharing frameworks.",
  "abstract_shown": true,
  "affiliations": [
    "Australian Centre for Health Engagement, Evidence and Values, School of Social Science, University of Wollongong, Wollongong, New South Wales, Australia. hgreen@uow.edu.au.",
    "Australian Centre for Health Engagement, Evidence and Values, School of Social Science, University of Wollongong, Wollongong, New South Wales, Australia.",
    "Torrens University, Adelaide, South Australia, Australia.",
    "Macquarie Law School, Macquarie University, Sydney, New South Wales, Australia.",
    "Population Health Research Network, University of Western Australia, Crawley, Western Australia, Australia.",
    "Health Consumers NSW, Sydney, New South Wales, Australia.",
    "Australian Government Department of Health and Aged Care, Data and Analytics Branch, Canberra, Australian Capital Territory, Australia.",
    "Australian Government Department of Health and Aged Care, Primary Care Strategy Branch, Melbourne, Victoria, Australia."
  ],
  "article_type": "research article",
  "arxiv": null,
  "author_total": 11,
  "authors": [
    {
      "affs": [
        0
      ],
      "name": "Heidi Green",
      "orcid": "0000-0002-7908-3819"
    },
    {
      "affs": [
        1,
        2
      ],
      "name": "Justin Beilby"
    },
    {
      "affs": [
        3
      ],
      "name": "Carolyn Adams"
    },
    {
      "affs": [
        1
      ],
      "name": "Alberto Nettel-Aguirre",
      "orcid": "0000-0001-6604-0652"
    },
    {
      "affs": [
        4
      ],
      "name": "Felicity Flack"
    },
    {
      "affs": [
        1,
        5
      ],
      "name": "Anthony Brown"
    },
    {
      "affs": [
        6
      ],
      "name": "Allison Clarke"
    },
    {
      "affs": [
        7
      ],
      "name": "Christian Jung"
    },
    {
      "affs": [
        1
      ],
      "name": "Belinda Fabrianesi"
    },
    {
      "affs": [
        1
      ],
      "name": "Lucy Carolan"
    },
    {
      "affs": [
        1
      ],
      "name": "Annette Braunack-Mayer"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/9cdqxm2s8b9hq.bib",
  "cited_by": 0,
  "doi": "10.1186/s12875-026-03490-4",
  "fulltext_url": "https://europepmc.org/articles/PMC13682028",
  "id": "9cdqxm2s8b9hq",
  "issns": [
    "2731-4553"
  ],
  "landing_url": "https://europepmc.org/article/MED/42902184",
  "language": "eng",
  "licence": "CC-BY-NC-ND",
  "licence_label": "CC BY-NC-ND",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by-nc-nd/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "lcc",
      "R5-920"
    ],
    [
      "openalex",
      "2739|Ethics in Clinical Research"
    ]
  ],
  "openalex": "W7170134175",
  "pdf_url": "https://europepmc.org/articles/PMC13682028?pdf=render",
  "pmcid": "PMC13682028",
  "pmid": "42902184",
  "published": "2026-07-01",
  "publisher": "BMC",
  "ris": "https://research.draconitic.com/paper/9cdqxm2s8b9hq.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T12:19:41Z",
      "native_id": "MED:42902184",
      "source": "europepmc",
      "url": "https://europepmc.org/article/MED/42902184"
    },
    {
      "first_seen": "2026-10-30T13:46:08Z",
      "native_id": "1667c95ed86b4d6c8f1f49f27fbd6b94",
      "source": "doaj",
      "url": "https://doi.org/10.1186/s12875-026-03490-4"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "openalex:2739|Ethics in Clinical Research",
      "subfield": "epidemiology-public-health"
    }
  ],
  "title": "Sharing general practice data: a qualitative study with Australian general practitioners.",
  "title_text": "Sharing general practice data: a qualitative study with Australian general practitioners.",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T13:46:08Z",
  "url": "https://research.draconitic.com/paper/9cdqxm2s8b9hq",
  "venue": "BMC primary care",
  "versions": []
}