{
  "abstract": "Purpose\n\nWhen surgery is indicated in patients with inflammatory bowel disease (IBD), timely intervention may reduce the risk of further complications. This study aimed to assess health-related quality of life (HRQoL) in relation to waiting time for IBD surgery.Methods\n\nThis cross-sectional, register-based study assessed HRQoL using the EQ-5D-5L questionnaire. Patients with IBD who had undergone surgery or were awaiting surgery between 2017 and 2023 at Sahlgrenska University Hospital, Gothenburg, Sweden, were identified and invited to participate.Results\n\nA total of 214 patients were included in the study (33.6% women, mean age 44.3 ± 16.9 years). Sixty percent had undergone surgery, while the remainder were awaiting surgery. The mean EQ VAS was 64.9, and the lowest scores were observed in patients waiting for surgery for over a year, compared to Swedish age-matched population norms, with a mean EQ VAS of 87.0. Using the Swedish value set, the mean EQ-5D-5L index was higher among patients waiting for surgery < 3 months compared with those waiting 12-24 months (p = 0.017) and > 24 months (p = 0.012). It was also higher among patients waiting 3-6 months compared with those waiting 12-24 months (p = 0.036) and > 24 months (p = 0.032).Conclusion\n\nProlonged waiting time for IBD surgery was associated with impaired HRQoL, particularly among patients who had waited more than 1 year. While causal inferences cannot be drawn from this cross-sectional study, the findings support incorporating patient-reported HRQoL into prioritisation of patients awaiting IBD surgery.Trial registration\n\nThe study has been registered in clinicaltrials.gov (NCT: 2022-05975-01).",
  "abstract_shown": true,
  "affiliations": [
    "Department of Surgery, IBD-SURG-Inflammatory Bowel Disease Surgical Research Group, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden. hanna.de.la.croix@vgregion.se.",
    "Department of Surgery, Sahlgrenska University Hospital, Region Västra Götaland, Gothenburg, Sweden. hanna.de.la.croix@vgregion.se.",
    "Department of Surgery, IBD-SURG-Inflammatory Bowel Disease Surgical Research Group, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.",
    "Department of Surgery, Sahlgrenska University Hospital, Region Västra Götaland, Gothenburg, Sweden.",
    "Gothia Forum for Clinical Trials, Region Västra Götaland, Sahlgrenska University Hospital, Gothenburg, Sweden.",
    "Department of Surgery, SSORG-Scandinavian Surgical Outcomes Research Group, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden."
  ],
  "article_type": "research article",
  "arxiv": null,
  "author_total": 6,
  "authors": [
    {
      "affs": [
        0,
        1
      ],
      "name": "Hanna de la Croix",
      "orcid": "0000-0003-3745-7162"
    },
    {
      "affs": [
        2,
        3
      ],
      "name": "Helena Åberg"
    },
    {
      "affs": [
        4
      ],
      "name": "Stephanie Fledsberg"
    },
    {
      "affs": [
        3,
        5
      ],
      "name": "Jennifer Park"
    },
    {
      "affs": [
        2,
        3
      ],
      "name": "Jonas Bengtsson"
    },
    {
      "affs": [
        2,
        3
      ],
      "name": "Maria Hermanson"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/9e34g5tg7xt5m.bib",
  "cited_by": 0,
  "doi": "10.1007/s00384-026-05258-9",
  "fulltext_url": "https://europepmc.org/articles/PMC13694504",
  "id": "9e34g5tg7xt5m",
  "issns": [
    "0179-1958",
    "1432-1262"
  ],
  "landing_url": "https://europepmc.org/article/MED/42909622",
  "language": "eng",
  "licence": "CC-BY",
  "licence_label": "CC BY",
  "licence_source": "article",
  "licence_url": "https://creativecommons.org/licenses/by/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "openalex",
      "1311|Inflammatory Bowel Disease"
    ]
  ],
  "openalex": "W7164207094",
  "pdf_url": "https://europepmc.org/articles/PMC13694504?pdf=render",
  "pmcid": "PMC13694504",
  "pmid": "42909622",
  "published": "2026-10-23",
  "publisher": null,
  "ris": "https://research.draconitic.com/paper/9e34g5tg7xt5m.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T12:20:03Z",
      "native_id": "MED:42909622",
      "source": "europepmc",
      "url": "https://europepmc.org/article/MED/42909622"
    }
  ],
  "subjects": [
    {
      "field": "biology",
      "origin": "openalex:1311|Inflammatory Bowel Disease",
      "subfield": "genetics-genomics"
    }
  ],
  "title": "Waiting time for surgery and health-related quality of life in patients with inflammatory bowel disease.",
  "title_text": "Waiting time for surgery and health-related quality of life in patients with inflammatory bowel disease.",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T12:20:03Z",
  "url": "https://research.draconitic.com/paper/9e34g5tg7xt5m",
  "venue": "International journal of colorectal disease",
  "versions": []
}