{
  "abstract": "Purpose Penile Cancer Data Base Sweden (PenCBaSe) V.2.0 is an update of PenCBaSe V.1.0, which was established in 2013 to address a wide range of epidemiological research questions in a population-based cohort of men with penile cancer.The study population in PenCBaSe V.2.0 was defined by 3883 cases of penile intraepithelial neoplasia (PeIN) or penile cancer registered in the National Penile Cancer Register (NPECR).Participants PenCBaSe V.2.0 includes 3883 cases of PeIN or penile cancer registered in the NPECR between 2000 and 2023 and two separate comparison cohorts with 38 448 comparators free from PeIN or penile cancer matched on birth year, sex and region of residence. The median age at inclusion was 69 years (range 18–101).Findings to date The database contains register-based information collected from standardised forms in the NPECR on diagnostic evaluation, tumour characteristics, primary treatment, lymph node management, postoperative complications and follow-up with high completeness (95% between 2000 and 2023) and validity. Moreover, by means of record linkage to six national healthcare and sociodemographic registers, data on socioeconomic factors, comorbidity and patterns of filings of prescribed drugs are available. The comorbidity burden was lower in the comparison cohort.Future plans PenCBaSe V.2.0 will be used to investigate a multitude of research questions within three principal domains: socioeconomic status and demographic factors, risk factors for disease and stage, respectively treatment-related outcomes and complications. The steering committee of PenCBaSe welcomes new collaborations. For more information, please contact the chairman of the steering committee of PenCBaSe (https://cancercentrum.se/diagnosbehandling/cancerdiagnoser/penis/kvalitetsregister.3518.html).",
  "abstract_shown": true,
  "affiliations": [
    "Department of Urology, Sahlgrenska University Hospital, Gothenburg, Västra Götaland County, Sweden",
    "Department of Urology, University of Gothenburg Institute of Clinical Sciences, Gothenburg, Västra Götaland County, Sweden",
    "Department of Urology, Skåne University Hospital, Malmö, Sweden",
    "Department of Translational Medicine, Lund University, Lund, Sweden",
    "Division of Urology, Karolinska Institutet, Stockholm, Sweden",
    "Department of Urology, Örebro University, Örebro, Sweden",
    "Department of Dermatology and Venereology, Lund University, Lund, Sweden",
    "Department of Medical Epidemiology and Biostatistics, Karolinska Institute, Stockholm, Sweden",
    "Department of Urology, Södersjukhuset, Stockholm, Stockholm County, Sweden",
    "Regional Cancer Centre Central Sweden, Uppsala, Sweden",
    "School of Medical Sciences, Örebro University, Örebro, Sweden"
  ],
  "article_type": null,
  "arxiv": null,
  "author_total": 10,
  "authors": [
    {
      "affs": [
        0,
        1
      ],
      "name": "Kimia Kohestani",
      "orcid": "0000-0003-0244-5508"
    },
    {
      "affs": [
        2,
        3,
        4
      ],
      "name": "Axel Gerdtsson"
    },
    {
      "affs": [
        5
      ],
      "name": "Dominik Glombik"
    },
    {
      "affs": [
        6
      ],
      "name": "Sinja Kristiansen"
    },
    {
      "affs": [
        7
      ],
      "name": "Mats Lambe"
    },
    {
      "affs": [
        0,
        1
      ],
      "name": "Jenny Magnusson"
    },
    {
      "affs": [
        8
      ],
      "name": "Per Nordlund"
    },
    {
      "affs": [
        9
      ],
      "name": "Erik Persson"
    },
    {
      "affs": [
        5,
        10
      ],
      "name": "Henrik Ugge"
    },
    {
      "affs": [
        5
      ],
      "name": "Peter Kirrander"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/b5k6s2z05xa8m.bib",
  "cited_by": 0,
  "doi": "10.1136/bmjopen-2026-122591",
  "fulltext_url": "https://bmjopen.bmj.com/content/16/11/e122591.full",
  "id": "b5k6s2z05xa8m",
  "issns": [
    "2044-6055",
    "2044-6055"
  ],
  "landing_url": "https://bmjopen.bmj.com/lookup/doi/10.1136/bmjopen-2026-122591",
  "language": "en",
  "licence": "CC-BY",
  "licence_label": "CC BY",
  "licence_source": "journal",
  "licence_url": "https://creativecommons.org/licenses/by/4.0/",
  "metadata_licence": null,
  "native_subjects": [
    [
      "lcc",
      "R"
    ]
  ],
  "openalex": null,
  "pdf_url": null,
  "pmcid": null,
  "pmid": null,
  "published": "2026-11-05",
  "publisher": "BMJ",
  "ris": "https://research.draconitic.com/paper/b5k6s2z05xa8m.ris",
  "sources": [
    {
      "first_seen": "2026-11-06T00:21:22Z",
      "native_id": "10.1136/bmjopen-2026-122591",
      "source": "crossref",
      "url": "https://bmjopen.bmj.com/lookup/doi/10.1136/bmjopen-2026-122591"
    },
    {
      "first_seen": "2026-11-09T14:21:24Z",
      "native_id": "3859142efa1145d8ae8678fafddf66b4",
      "source": "doaj",
      "url": "https://doi.org/10.1136/bmjopen-2026-122591"
    }
  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "lcc:R",
      "subfield": "general"
    }
  ],
  "title": "Cohort profile: Penile Cancer Data Base Sweden (PenCBaSe) V.2.0",
  "title_text": "Cohort profile: Penile Cancer Data Base Sweden (PenCBaSe) V.2.0",
  "type": "peer-reviewed",
  "updated_at": "2026-11-09T14:21:24Z",
  "url": "https://research.draconitic.com/paper/b5k6s2z05xa8m",
  "venue": "BMJ Open",
  "versions": []
}