{
  "abstract": "目的了解宁夏回族自治区孤独症谱系障碍（ASD）儿童家庭养护现状、照顾者负担、文化水平及支持需求等，填补西部民族地区ASD儿童家庭研究的空白，为构建本土化、精准化的社会支持体系、完善公共卫生服务政策提供科学依据。方法选取宁夏自治区34家康复定点机构262名ASD儿童主要照顾者为研究对象，设计调查问卷，面向家长开展横断面调查，内容包括一般人口学资料、家庭经济与康复支出、照顾者负担、心理状态及支持需求。采用SPSS 27.0进行统计分析。结果被调查者中73.66%为专职照顾者，家庭年收入≤4万元占38.93%，ASD儿童康复费用除政策支持外，家庭自付比例达53.43%；照顾者普遍存在中度及以上照护负担，4.57%存在明显消极心态，表现为焦虑、抑郁、照料倦怠、社会退缩等；家庭迫切需求居家康复技能培训与常态化心理支持。结论宁夏回族自治区ASD儿童家庭呈现专职照护普遍、经济负担沉重、心理压力突出、专业需求强烈的特征，亟需构建经济救助+康复赋能+心理支持+社区服务的四位一体综合支持模式。",
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  "article_type": null,
  "arxiv": null,
  "author_total": 3,
  "authors": [
    {
      "name": "杨国芬"
    },
    {
      "name": "张佳琪"
    },
    {
      "name": "黄丽华"
    }
  ],
  "bibtex": "https://research.draconitic.com/paper/en25h5xm05wvv.bib",
  "cited_by": 0,
  "doi": null,
  "fulltext_url": "http://www.chsr.cn/zh/article/doi/10.3969/j.issn.1672-4933.2026.05.017/",
  "id": "en25h5xm05wvv",
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  "landing_url": "http://www.chsr.cn/zh/article/doi/10.3969/j.issn.1672-4933.2026.05.017/",
  "language": "zh",
  "licence": "CC-BY-NC-ND",
  "licence_label": "CC BY-NC-ND",
  "licence_source": "journal",
  "licence_url": "https://creativecommons.org/licenses/by-nc-nd/4.0/",
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  "native_subjects": [
    [
      "lcc",
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  "published": "2026-09-01",
  "publisher": "Limited Liability Company of Chinese Scientific Journal of Hearing and Speech Rehabilitation",
  "ris": "https://research.draconitic.com/paper/en25h5xm05wvv.ris",
  "sources": [
    {
      "first_seen": "2026-10-30T13:45:18Z",
      "native_id": "28d856242ef74067a6ed31525ac61d9c",
      "source": "doaj",
      "url": "http://www.chsr.cn/zh/article/doi/10.3969/j.issn.1672-4933.2026.05.017/"
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  ],
  "subjects": [
    {
      "field": "medicine",
      "origin": "lcc:R",
      "subfield": "general"
    }
  ],
  "title": "宁夏回族自治区孤独症谱系障碍儿童家庭养护现状及支持资源需求调查研究",
  "title_text": "宁夏回族自治区孤独症谱系障碍儿童家庭养护现状及支持资源需求调查研究",
  "type": "peer-reviewed",
  "updated_at": "2026-10-30T13:45:18Z",
  "url": "https://research.draconitic.com/paper/en25h5xm05wvv",
  "venue": "Zhongguo tingli yuyan kangfu kexue zazhi",
  "versions": []
}