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Peer-reviewedCC BYSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Community-based organizations' experiences in using a digital resource referral platform (ConnectedNest) to support cancer patients.

  • Eduardo R Osegueda1,2,3
  • Kris Newcomer4
  • Allison L Iwan5
  • Alique Topalian6
  • Helen M Parsons5
  • Abbie Begnaud7
  • Pinar Karaca-Mandic4,8
  • Dori Cross9
  • David Haynes4,10
10 affiliations
  1. 1School of Public Health, Health Policy & Management, University of Minnesota, Minneapolis, USA. [email protected].
  2. 2School of Public Health, Epidemiology & Community Health, University of Minnesota, Minneapolis, USA. [email protected].
  3. 3XanthosHealth, Minneapolis, USA. [email protected].
  4. 4XanthosHealth, Minneapolis, USA.
  5. 5School of Public Health, University of Minnesota, Minneapolis, USA.
  6. 6College of Medicine, University of Cincinnati, Cincinnati, USA.
  7. 7Medical School, Department of Medicine, University of Minnesota, Minneapolis, USA.
  8. 8Carlson School of Management, University of Minnesota, Minneapolis, USA.
  9. 9School of Public Health, Health Policy & Management, University of Minnesota, Minneapolis, USA.
  10. 10Institute for Health Informatics, University of Minnesota, Minneapolis, USA.
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Abstract

Background

Over 8 million US patients with cancer experience health-related social needs (HSRNs) (e.g., food, transportation). Despite the clear importance of addressing HRSNs, there remains a gap in the IT-infrastructure allowing providers to monitor and facilitate patient connections to external resources. We created a community resource referral platform (ConnectedNest) to help connect cancer survivors with community-based organizations (CBOs). The goal of this study was to better understand the feasibility of implementing CRRPs into cancer-focused CBOs.Methods

After piloting ConnectedNest, we invited 13 CBOs to participate in semi-structured interviews to learn from their experience. Two qualitative researchers used a directed content analysis approach to identify insights and key recommendations for improving engagement based on constructs from the RE-AIM Framework.Results

We identified barriers and facilitators describing their (1) adoption of the ConnectedNest technology, (2) reach of clients, (3) implementation of ConnectedNest, and (4) long-term maintenance of the technology. CBOs varied in both in their organization's programming and target populations. Participants reported alignment between ConnectedNest workflows and organizational roles as key factors for implementation success. All CBOs expressed interest in continuing to use ConnectedNest. Key recommendations include improving data integration and enhancing the caregiver-user experience.Discussion

CBO programming breadth and the size of their target client population largely determined their experience during the pilot study. Community resource referral platforms can support CBOs by clearly distinguishing unique programs and eligibility requirements within the platform.Conclusion

Community resource referral platforms have potential acceptability among cancer-focused CBOs. Co-creators see the potential value of these tools.

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Cite

BibTeXRIS
BibTeX
@article{osegueda2026communitybased,
  title = {{Community-based organizations' experiences in using a digital resource referral platform (ConnectedNest) to support cancer patients.}},
  author = {Eduardo R Osegueda and Kris Newcomer and Allison L Iwan and Alique Topalian and Helen M Parsons and Abbie Begnaud and Pinar Karaca-Mandic and Dori Cross and David Haynes},
  journal = {Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer},
  year = {2026},
  month = nov,
  doi = {10.1007/s00520-026-11425-z},
  url = {https://europepmc.org/article/MED/43007486},
  note = {CC BY},
}
RIS
TY  - JOUR
TI  - Community-based organizations' experiences in using a digital resource referral platform (ConnectedNest) to support cancer patients.
AU  - Eduardo R Osegueda
AU  - Kris Newcomer
AU  - Allison L Iwan
AU  - Alique Topalian
AU  - Helen M Parsons
AU  - Abbie Begnaud
AU  - Pinar Karaca-Mandic
AU  - Dori Cross
AU  - David Haynes
PY  - 2026
DA  - 2026/11/10
JO  - Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
DO  - 10.1007/s00520-026-11425-z
UR  - https://europepmc.org/article/MED/43007486
AB  - Background  Over 8 million US patients with cancer experience health-related social needs (HSRNs) (e.g., food, transportation). Despite the clear importance of addressing HRSNs, there remains a gap in the IT-infrastructure allowing providers to monitor and facilitate patient connections to external resources. We created a community resource referral platform (ConnectedNest) to help connect cancer survivors with community-based organizations (CBOs). The goal of this study was to better understand the feasibility of implementing CRRPs into cancer-focused CBOs.Methods  After piloting ConnectedNest, we invited 13 CBOs to participate in semi-structured interviews to learn from their experience. Two qualitative researchers used a directed content analysis approach to identify insights and key recommendations for improving engagement based on constructs from the RE-AIM Framework.Results  We identified barriers and facilitators describing their (1) adoption of the ConnectedNest technology, (2) reach of clients, (3) implementation of ConnectedNest, and (4) long-term maintenance of the technology. CBOs varied in both in their organization's programming and target populations. Participants reported alignment between ConnectedNest workflows and organizational roles as key factors for implementation success. All CBOs expressed interest in continuing to use ConnectedNest. Key recommendations include improving data integration and enhancing the caregiver-user experience.Discussion  CBO programming breadth and the size of their target client population largely determined their experience during the pilot study. Community resource referral platforms can support CBOs by clearly distinguishing unique programs and eligibility requirements within the platform.Conclusion  Community resource referral platforms have potential acceptability among cancer-focused CBOs. Co-creators see the potential value of these tools.
SN  - 0941-4355
SN  - 1433-7339
ER  -