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Peer-reviewedCC BYJHLT open

“It’s Not Like My Old Life, But It’s Still Freedom”: An ACTION learning network mixed methods analysis of the adolescent ventricular assist device experience at home

  • Kelly E. Rea1
  • Eleanor Greiner2
  • Katie Flaspohler2
  • Mary C. Jenkins3
  • Dean S. Karahalios4
  • Michelle Mijon5
  • Shannon Oliver6
  • Zachary Hutchinson7
  • Anna Joong4
  • Joseph Spinner3
  • Melissa K. Cousino1
7 affiliations
  1. 1Division of Pediatric Psychology, Department of Pediatrics, C.S. Mott Children’s Hospital, Congenital Heart Center, Michigan Medicine, University of Michigan, 1540 E. Hospital Drive, Ann Arbor, MI 48109
  2. 2The Heart Institute, Cincinnati Children’s Hospital Medical Center, University of Cincinnati College of Medicine, 3333 Burnet Avenue, Cincinnati, OH 45229
  3. 3Baylor College of Medicine / Texas Children’s Hospital, 6621 Fannin Street, Houston, TX 77030
  4. 4Division of Pediatric Cardiology, Department of Pediatrics, Ann & Robert H. Lurie Children’s Hospital of Chicago, 225 E. Chicago Avenue, Chicago, IL 60611
  5. 5Joe DiMaggio Children’s Hospital, 1005 Joe DiMaggio Drive, Hollywood, FL 33021
  6. 6Department of Pediatrics, University of Alberta, 11405 87 Avenue NW, Edmonton, Alberta T6G 1C9, Canada
  7. 7Seattle Children's Hospital, Seattle, WA
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Cite

BibTeXRIS
BibTeX
@article{rea2026like,
  title = {{“It’s Not Like My Old Life, But It’s Still Freedom”: An ACTION learning network mixed methods analysis of the adolescent ventricular assist device experience at home}},
  author = {Kelly E. Rea and Eleanor Greiner and Katie Flaspohler and Mary C. Jenkins and Dean S. Karahalios and Michelle Mijon and Shannon Oliver and Zachary Hutchinson and Anna Joong and Joseph Spinner and Melissa K. Cousino},
  journal = {JHLT open},
  year = {2026},
  month = sep,
  url = {https://europepmc.org/article/PMC/PMC13656947},
  note = {CC BY},
}
RIS
TY  - JOUR
TI  - “It’s Not Like My Old Life, But It’s Still Freedom”: An ACTION learning network mixed methods analysis of the adolescent ventricular assist device experience at home
AU  - Kelly E. Rea
AU  - Eleanor Greiner
AU  - Katie Flaspohler
AU  - Mary C. Jenkins
AU  - Dean S. Karahalios
AU  - Michelle Mijon
AU  - Shannon Oliver
AU  - Zachary Hutchinson
AU  - Anna Joong
AU  - Joseph Spinner
AU  - Melissa K. Cousino
PY  - 2026
DA  - 2026/09/16
JO  - JHLT open
UR  - https://europepmc.org/article/PMC/PMC13656947
SN  - 2950-1334
ER  -