Type 2 Diabetes Self-Care in Family Life: A Qualitative Descriptive Study of Patient and Family Perspectives from Two Community Health Centers in Ogan Ilir Regency, South Sumatra, Indonesia.
- 1Doctoral Program in Nursing, Faculty of Nursing, Universitas Padjadjaran, Bandung, West Java, Indonesia.
- 2Department of Critical Care and Emergency Nursing, Faculty of Nursing, Universitas Padjadjaran, Bandung, West Java, Indonesia.
- 3Department of Community Health Nursing, Faculty of Nursing, Universitas Padjadjaran, Bandung, West Java, Indonesia.
Abstract
Purpose
To explore how adults living with type 2 diabetes mellitus (T2DM) and family members described self-care within everyday family life at two community health centers in Ogan Ilir Regency, South Sumatra, Indonesia, using the Self-Care of Chronic Illness (SCCI) framework as a sensitizing lens.Patients and methods
A qualitative descriptive study was conducted at two community health centers in Ogan Ilir Regency, South Sumatra, Indonesia. Ten adults living with T2DM and five family members were purposively recruited and participated in individual semistructured interviews. Data were analyzed using reflexive thematic analysis combining deductive attention to SCCI concepts with inductive coding. Patient and family accounts were analyzed as separate, complementary perspectives rather than as matched patient-family dyads.Results
Five interconnected themes were developed: self-care was shaped by everyday food and family routines; monitoring often began when the body "spoke"; recognizing bodily changes did not always translate into knowing what to do; family involvement shifted among assistance, supervision, restriction, and permissiveness; and participants wanted knowledge that could be translated into affordable and feasible action. Across these themes, reported family practices operated across self-care maintenance, monitoring, and management, with particular uncertainty between recognizing bodily changes and selecting a response. These findings provide a contextual and interpretive account rather than identifying a new self-care process.Conclusion
In this small, context-specific sample, separate patient and family perspectives suggested that T2DM self-care was relational and context-dependent, particularly in the transition from recognizing bodily changes to selecting a response. These findings may inform the future development and evaluation of family-responsive support in comparable primary care settings.
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BibTeX
@article{susanti2026type,
title = {{Type 2 Diabetes Self-Care in Family Life: A Qualitative Descriptive Study of Patient and Family Perspectives from Two Community Health Centers in Ogan Ilir Regency, South Sumatra, Indonesia.}},
author = {Eva Susanti and Cecep Eli Kosasih and Neti Juniarti and Ayu Prawesti Priambodo},
journal = {Journal of multidisciplinary healthcare},
year = {2026},
month = oct,
doi = {10.2147/jmdh.s651406},
url = {https://europepmc.org/article/MED/42903710},
note = {CC BY-NC},
}
RIS
TY - JOUR
TI - Type 2 Diabetes Self-Care in Family Life: A Qualitative Descriptive Study of Patient and Family Perspectives from Two Community Health Centers in Ogan Ilir Regency, South Sumatra, Indonesia.
AU - Eva Susanti
AU - Cecep Eli Kosasih
AU - Neti Juniarti
AU - Ayu Prawesti Priambodo
PY - 2026
DA - 2026/10/16
JO - Journal of multidisciplinary healthcare
DO - 10.2147/jmdh.s651406
UR - https://europepmc.org/article/MED/42903710
AB - Purpose To explore how adults living with type 2 diabetes mellitus (T2DM) and family members described self-care within everyday family life at two community health centers in Ogan Ilir Regency, South Sumatra, Indonesia, using the Self-Care of Chronic Illness (SCCI) framework as a sensitizing lens.Patients and methods A qualitative descriptive study was conducted at two community health centers in Ogan Ilir Regency, South Sumatra, Indonesia. Ten adults living with T2DM and five family members were purposively recruited and participated in individual semistructured interviews. Data were analyzed using reflexive thematic analysis combining deductive attention to SCCI concepts with inductive coding. Patient and family accounts were analyzed as separate, complementary perspectives rather than as matched patient-family dyads.Results Five interconnected themes were developed: self-care was shaped by everyday food and family routines; monitoring often began when the body "spoke"; recognizing bodily changes did not always translate into knowing what to do; family involvement shifted among assistance, supervision, restriction, and permissiveness; and participants wanted knowledge that could be translated into affordable and feasible action. Across these themes, reported family practices operated across self-care maintenance, monitoring, and management, with particular uncertainty between recognizing bodily changes and selecting a response. These findings provide a contextual and interpretive account rather than identifying a new self-care process.Conclusion In this small, context-specific sample, separate patient and family perspectives suggested that T2DM self-care was relational and context-dependent, particularly in the transition from recognizing bodily changes to selecting a response. These findings may inform the future development and evaluation of family-responsive support in comparable primary care settings.
SN - 1178-2390
ER -