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Peer-reviewedCC BY-NC 4.0World Journal of Clinical Pediatrics

Empowerment, satisfaction, and family quality of life in early intervention: A qualitative study of professional practices received

Abstract

BACKGROUND: Early intervention (EI) has evolved toward the family-centered approach, operationalized through family-centered practices. Evidence suggests that the quality of implementation of these practices is associated with family outcomes such as empowerment, satisfaction, family quality of life (FQoL), and potentially caregiver burden/stress. However, in transitioning contexts, gaps persist between the model and perceived practice.

AIM: To explore from the perspective of Spanish families receiving EI services, how the professional practices they perceive relate to their experiences of empowerment/self-confidence, satisfaction, caregiver burden/stress, and FQoL, and to what extent these practices are perceived as aligned with the principles of the family-centered approach.

METHODS: An exploratory-descriptive qualitative observational study with an interpretative phenomenological orientation. Thirty families from Spain’s 17 Autonomous Communities participated. In-depth individual semi-structured interviews were conducted (in person or via videoconference), audio-recorded, and transcribed verbatim. The matrix analysis was carried out using Atlas. ti (v.9) following an inductive-deductive strategy (open, axial, and selective coding). Rigor was enhanced through expert panel review and interrater agreement (Kappa = 0.83).

RESULTS: An exploratory-descriptive qualitative observational study with an interpretative phenomenological orientation. Thirty families from Spain’s 17 Autonomous Communities participated. In-depth individual semi-structured interviews were conducted (in person or via videoconference), audio-recorded, and transcribed verbatim. Thematic analysis was carried out using Atlas. ti (v.9) following an inductive-deductive strategy (open, axial, and selective coding). Rigor was enhanced through expert panel review and interrater agreement (Kappa = 0.83).

CONCLUSION: From the family perspective, the impact of EI depends on the extent to which family-centered practices are implemented with quality, promoting genuine participation and transfer to daily routines. Trust, self-efficacy, and empowerment emerge as proximal outcomes linked to well-being and FQoL, while caregiver burden/stress may limit these processes. Incorporating family outcomes (FQoL, burden/stress) into service evaluation may help guide improvements in the implementation of EI in Spain.

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BibTeX
@article{montanomerchan2026empowerment,
  title = {{Empowerment, satisfaction, and family quality of life in early intervention: A qualitative study of professional practices received}},
  author = {Mónica Montano-Merchán and Roberto Sanz-Ponce and Joana Calero-Plaza},
  journal = {World Journal of Clinical Pediatrics},
  year = {2026},
  month = nov,
  doi = {10.5409/wjcp.120102},
  url = {https://doi.org/10.5409/wjcp.120102},
  note = {CC BY-NC 4.0},
}
RIS
TY  - JOUR
TI  - Empowerment, satisfaction, and family quality of life in early intervention: A qualitative study of professional practices received
AU  - Mónica Montano-Merchán
AU  - Roberto Sanz-Ponce
AU  - Joana Calero-Plaza
PY  - 2026
DA  - 2026/11/03
JO  - World Journal of Clinical Pediatrics
DO  - 10.5409/wjcp.120102
UR  - https://doi.org/10.5409/wjcp.120102
AB  - BACKGROUND: Early intervention (EI) has evolved toward the family-centered approach, operationalized through family-centered practices. Evidence suggests that the quality of implementation of these practices is associated with family outcomes such as empowerment, satisfaction, family quality of life (FQoL), and potentially caregiver burden/stress. However, in transitioning contexts, gaps persist between the model and perceived practice.  AIM: To explore from the perspective of Spanish families receiving EI services, how the professional practices they perceive relate to their experiences of empowerment/self-confidence, satisfaction, caregiver burden/stress, and FQoL, and to what extent these practices are perceived as aligned with the principles of the family-centered approach.  METHODS: An exploratory-descriptive qualitative observational study with an interpretative phenomenological orientation. Thirty families from Spain’s 17 Autonomous Communities participated. In-depth individual semi-structured interviews were conducted (in person or via videoconference), audio-recorded, and transcribed verbatim. The matrix analysis was carried out using Atlas. ti (v.9) following an inductive-deductive strategy (open, axial, and selective coding). Rigor was enhanced through expert panel review and interrater agreement (Kappa = 0.83).  RESULTS: An exploratory-descriptive qualitative observational study with an interpretative phenomenological orientation. Thirty families from Spain’s 17 Autonomous Communities participated. In-depth individual semi-structured interviews were conducted (in person or via videoconference), audio-recorded, and transcribed verbatim. Thematic analysis was carried out using Atlas. ti (v.9) following an inductive-deductive strategy (open, axial, and selective coding). Rigor was enhanced through expert panel review and interrater agreement (Kappa = 0.83).  CONCLUSION: From the family perspective, the impact of EI depends on the extent to which family-centered practices are implemented with quality, promoting genuine participation and transfer to daily routines. Trust, self-efficacy, and empowerment emerge as proximal outcomes linked to well-being and FQoL, while caregiver burden/stress may limit these processes. Incorporating family outcomes (FQoL, burden/stress) into service evaluation may help guide improvements in the implementation of EI in Spain.
SN  - 2219-2808
ER  -