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Peer-reviewedCC BY 4.0PLOS One

Participant perspectives on a person-centred care model for mobile individuals in HIV care from the SEARCH Dynamic Choice Treatment trial in rural Kenya and Uganda

5 more authors
6 affiliations
  1. 1Division of Prevention Sciences, University of California, San Francisco (UCSF), San Francisco, California, United States of America
  2. 2Kenya Medical Research Institute (KEMRI), Kisumu, Kenya
  3. 3Infectious Diseases Research Collaboration, Kampala, Uganda
  4. 4University of California, Berkeley, Biostatistics, Epidemiology, and Computational Precision Health, Berkeley, California, United States of America
  5. 5Department of Medicine, Makerere University College of Health Sciences, Kampala, Uganda
  6. 6University of California, San Francisco (UCSF), Medicine, San Francisco, California, United States of America

Abstract

Introduction: Mobile populations experience difficulties maintaining antiretroviral therapy (ART) adherence and HIV care engagement. We sought to explore participant perceptions of a patient-centred model aimed at enhancing care engagement through ‘dynamic choice’ treatment services for mobile individuals. Methods: We conducted 23 qualitative interviews with participants (N = 18) and healthcare providers (N = 5) from eight communities in southwest Uganda and western Kenya enrolled in a dynamic choice intervention that provided six-month and community ART refills; a “travel pack” with a travel checklist, discreetly packed ART, and an emergency supply of ART; phone access to a mobility coordinator; and facilitated transfers to distal clinics. Interviews explored participant life and mobility contexts, intervention experiences and preferences (as recipient or provider), and patient-provider relations. We employed a framework analysis of selected codes to identify emergent themes around intervention components and recommendations for improvement. Results: Participants liked all options, the travel pack being most preferred. Longer times between refills allowed participants to concentrate on ART adherence, rather than on managing clinic appointments in the context of uncertain mobility. Viral load counselling was appreciated for explaining the relationship between medication adherence, viral load, and opportunistic infections. Poverty and food insecurity remain obstacles to ideal ART adherence. Recommendations: Participants suggested scaling up these support services to the whole community, incorporating services to treat additional diseases, and food or employment support to help improve overall health outcomes. Care providers also recommended strengthening supply chains and deploying electronic medical records country-wide to facilitate care for mobile individuals.

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BibTeX
@article{johnsonperetz2026participant,
  title = {{Participant perspectives on a person-centred care model for mobile individuals in HIV care from the SEARCH Dynamic Choice Treatment trial in rural Kenya and Uganda}},
  author = {Jason Johnson-Peretz and James Ayieko and Lawrence Owino and Cecilia Akatukwasa and Anjeline Onyango and Fred Atwine and Titus O. Arunga and Colette Aoko and Laura B. Balzer and Moses R. Kamya and Edwin Charlesbois and Jane Kabami and Maya L. Petersen and Gabriel Chamie and Diane V. Havlir and Elijah Kakande and Carol S. Camlin},
  journal = {PLOS One},
  year = {2026},
  month = sep,
  doi = {10.1371/journal.pone.0356605},
  url = {https://doi.org/10.1371/journal.pone.0356605},
  note = {CC BY 4.0},
}
RIS
TY  - JOUR
TI  - Participant perspectives on a person-centred care model for mobile individuals in HIV care from the SEARCH Dynamic Choice Treatment trial in rural Kenya and Uganda
AU  - Jason Johnson-Peretz
AU  - James Ayieko
AU  - Lawrence Owino
AU  - Cecilia Akatukwasa
AU  - Anjeline Onyango
AU  - Fred Atwine
AU  - Titus O. Arunga
AU  - Colette Aoko
AU  - Laura B. Balzer
AU  - Moses R. Kamya
AU  - Edwin Charlesbois
AU  - Jane Kabami
AU  - Maya L. Petersen
AU  - Gabriel Chamie
AU  - Diane V. Havlir
AU  - Elijah Kakande
AU  - Carol S. Camlin
PY  - 2026
DA  - 2026/09/03
JO  - PLOS One
DO  - 10.1371/journal.pone.0356605
UR  - https://doi.org/10.1371/journal.pone.0356605
AB  - Introduction: Mobile populations experience difficulties maintaining antiretroviral therapy (ART) adherence and HIV care engagement. We sought to explore participant perceptions of a patient-centred model aimed at enhancing care engagement through ‘dynamic choice’ treatment services for mobile individuals. Methods: We conducted 23 qualitative interviews with participants (N = 18) and healthcare providers (N = 5) from eight communities in southwest Uganda and western Kenya enrolled in a dynamic choice intervention that provided six-month and community ART refills; a “travel pack” with a travel checklist, discreetly packed ART, and an emergency supply of ART; phone access to a mobility coordinator; and facilitated transfers to distal clinics. Interviews explored participant life and mobility contexts, intervention experiences and preferences (as recipient or provider), and patient-provider relations. We employed a framework analysis of selected codes to identify emergent themes around intervention components and recommendations for improvement. Results: Participants liked all options, the travel pack being most preferred. Longer times between refills allowed participants to concentrate on ART adherence, rather than on managing clinic appointments in the context of uncertain mobility. Viral load counselling was appreciated for explaining the relationship between medication adherence, viral load, and opportunistic infections. Poverty and food insecurity remain obstacles to ideal ART adherence. Recommendations: Participants suggested scaling up these support services to the whole community, incorporating services to treat additional diseases, and food or employment support to help improve overall health outcomes. Care providers also recommended strengthening supply chains and deploying electronic medical records country-wide to facilitate care for mobile individuals.
SN  - 1932-6203
ER  -