Towards a pedagogy of memory care
Abstract
As part of a qualitative study based on interviews with adult children caring for a parent with Alzheimer's disease or related dementia, we identified: 1) care practices focused on family memory (through the collection, preservation, passing on stories, objects and administrative records) in order to maintain a sense of family history; and 2) care practices directed towards the sick parents, which were based either on drawing upon family memories to support communication and well-being, or, conversely, on avoiding them to prevent suffering and conflict. This article proposes to promote the notion of 'memorial care' embodied by these discreet care-giving practices deployed by family caregivers. We discuss the challenges of bringing this concept to the fore, which includes, in particular, the recognition of largely invisible and informal work, as well as the enrichment of healthcare professionals' practices in supporting carers. Finally, we outline what might constitute a pedagogy of memory care, as well as possible avenues for training and knowledge transfer for carers and healthcare professionals.
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BibTeX
@article{zolnowskikolp2026towards,
title = {{Towards a pedagogy of memory care}},
author = {Victoria Zolnowski-Kolp and Lennize Pereira Paulo and Sylvie Pariel and Catherine Tourette-Turgis},
journal = {NPG: Neurologie - Psychiatrie - Gériatrie},
year = {2026},
month = sep,
doi = {10.1016/j.npg.2026.06.001},
url = {https://hal.science/hal-05734387v1},
note = {CC BY 4.0},
}
RIS
TY - JOUR
TI - Towards a pedagogy of memory care
AU - Victoria Zolnowski-Kolp
AU - Lennize Pereira Paulo
AU - Sylvie Pariel
AU - Catherine Tourette-Turgis
PY - 2026
DA - 2026/09/01
JO - NPG: Neurologie - Psychiatrie - Gériatrie
DO - 10.1016/j.npg.2026.06.001
UR - https://hal.science/hal-05734387v1
AB - As part of a qualitative study based on interviews with adult children caring for a parent with Alzheimer's disease or related dementia, we identified: 1) care practices focused on family memory (through the collection, preservation, passing on stories, objects and administrative records) in order to maintain a sense of family history; and 2) care practices directed towards the sick parents, which were based either on drawing upon family memories to support communication and well-being, or, conversely, on avoiding them to prevent suffering and conflict. This article proposes to promote the notion of 'memorial care' embodied by these discreet care-giving practices deployed by family caregivers. We discuss the challenges of bringing this concept to the fore, which includes, in particular, the recognition of largely invisible and informal work, as well as the enrichment of healthcare professionals' practices in supporting carers. Finally, we outline what might constitute a pedagogy of memory care, as well as possible avenues for training and knowledge transfer for carers and healthcare professionals.
SN - 1627-4830
SN - 2214-0913
ER -