Call Them by Their Name: What Patient-Centered Care Looks Like from Inside the Gown
Abstract
Critical illness erodes more than the body. It erodes the patient’s sense of self in ways that compound clinical vulnerability and shape the trajectory of recovery. Drawing on the author’s lived experience as a Stage IV lymphoma patient who spent extended time in intensive care, this Patient Perspective reflects on five practices that proved meaningful from inside the hospital gown: deliberately counteracting the identity-erasing effects of institutional dress and routine, prioritizing continuity of clinical staff to provide a cognitive anchor during impairment, including family members, as the patient defines and permits, in the emotional reality of care decisions, communicating uncertainty honestly rather than offering false reassurance, and allowing visible emotion from clinicians to reinforce the patient’s humanity. Each observation is grounded in published literature on dehumanization in medicine, continuity of care, post-intensive care syndrome-family, prognostic communication, and compassionate care, and reframed through the lens of patient experience to make the clinical relevance concrete. The author argues that identity preservation during critical illness is not a matter of bedside manner but a clinical posture with implications for engagement, adherence, and recovery. The paper closes with a brief reflection on structured patient advocacy as a vehicle for cognitive rehabilitation and identity reconstruction after discharge. The practices described ask nothing of budgets or technology, only of attention. They ask care teams to recognize the person inside the gown before treating the body.
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BibTeX
@article{srdjanstakicedd2026call,
title = {{Call Them by Their Name: What Patient-Centered Care Looks Like from Inside the Gown}},
author = {Srdjan Stakic EdD, MFA},
journal = {Journal of Patient Experience},
year = {2026},
month = nov,
doi = {10.1177/23743735261505557},
url = {https://doi.org/10.1177/23743735261505557},
note = {CC BY},
}
RIS
TY - JOUR
TI - Call Them by Their Name: What Patient-Centered Care Looks Like from Inside the Gown
AU - Srdjan Stakic EdD, MFA
PY - 2026
DA - 2026/11/04
JO - Journal of Patient Experience
DO - 10.1177/23743735261505557
UR - https://doi.org/10.1177/23743735261505557
AB - Critical illness erodes more than the body. It erodes the patient’s sense of self in ways that compound clinical vulnerability and shape the trajectory of recovery. Drawing on the author’s lived experience as a Stage IV lymphoma patient who spent extended time in intensive care, this Patient Perspective reflects on five practices that proved meaningful from inside the hospital gown: deliberately counteracting the identity-erasing effects of institutional dress and routine, prioritizing continuity of clinical staff to provide a cognitive anchor during impairment, including family members, as the patient defines and permits, in the emotional reality of care decisions, communicating uncertainty honestly rather than offering false reassurance, and allowing visible emotion from clinicians to reinforce the patient’s humanity. Each observation is grounded in published literature on dehumanization in medicine, continuity of care, post-intensive care syndrome-family, prognostic communication, and compassionate care, and reframed through the lens of patient experience to make the clinical relevance concrete. The author argues that identity preservation during critical illness is not a matter of bedside manner but a clinical posture with implications for engagement, adherence, and recovery. The paper closes with a brief reflection on structured patient advocacy as a vehicle for cognitive rehabilitation and identity reconstruction after discharge. The practices described ask nothing of budgets or technology, only of attention. They ask care teams to recognize the person inside the gown before treating the body.
SN - 2374-3743
SN - 2374-3735
ER -