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Peer-reviewedCC BY-NCLentera Perawat

Family caregivers’ experience in providing home-based palliative care: A descriptive phenomenological study

  • Karolin Adhisty1
  • Mutia Nadra Maulida1
  • Siti Sarahdeaz F2
  • Zesi Aprilia3
  1. 1Departement of Maternity, Nursing Study Program, Medical Faculty, Universitas Sriwijaya, Palembang, Indonesia
  2. 2Departement of physiology, Medical Faculty, Universitas Sriwijaya, Palembang, Indonesia
  3. 3Departement of Pediatric, Nursing Study Program, Medical Faculty, Universitas Sriwijaya, Palembang, Indonesia
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Abstract

Background: Families, as a vital part of palliative care, need to be identified and their roles and functions explored in order to improve patients’ quality of life at home following hospitalisation.

Objective: This study aims to identify the current situation regarding patient care at home.

Methods: The method used in this study was a qualitative approach employing a descriptive-phenomenological methodology. informants were selected based on purposive sampling criteria, with a total of nine informants. Interviews were conducted using a semi-structured interview technique, in the Sakatiga Village Health Center.

Results: The results of this study indicate that experiences of caring for palliative care patients vary; families, as a vital part of patient care, must be able to provide care for patients, even though family carers are likely to face various challenges, such as a lack of knowledge regarding care provision. The findings further examine the conditions of care provided at home, including: the assessment of the patient’s and family’s condition; the patient’s complaints regarding their condition; the family’s feelings towards the patient’s condition; the family’s coping mechanisms; dilemmas in meeting the patient’s care needs; and medical information required to understand the patient’s condition.

Conclusion: The results of this study indicate that families in providing palliative care need a forum to discuss, talk, and express their feelings while providing patient care at home. This is necessary because apart from being an important part of care, families are also required to always be able to carry out their functions optimally.

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Cite

BibTeXRIS
BibTeX
@article{adhisty2026family,
  title = {{Family caregivers’ experience in providing home-based palliative care: A descriptive phenomenological study}},
  author = {Karolin Adhisty and Mutia Nadra Maulida and Siti Sarahdeaz F and Zesi Aprilia},
  journal = {Lentera Perawat},
  year = {2026},
  month = jul,
  doi = {10.52235/lp.v7i3.784},
  url = {https://doi.org/10.52235/lp.v7i3.784},
  note = {CC BY-NC},
}
RIS
TY  - JOUR
TI  - Family caregivers’ experience in providing home-based palliative care: A descriptive phenomenological study
AU  - Karolin Adhisty
AU  - Mutia Nadra Maulida
AU  - Siti Sarahdeaz F
AU  - Zesi Aprilia
PY  - 2026
DA  - 2026/07/01
JO  - Lentera Perawat
DO  - 10.52235/lp.v7i3.784
UR  - https://doi.org/10.52235/lp.v7i3.784
AB  - Background: Families, as a vital part of palliative care, need to be identified and their roles and functions explored in order to improve patients’ quality of life at home following hospitalisation.  Objective: This study aims to identify the current situation regarding patient care at home.  Methods: The method used in this study was a qualitative approach employing a descriptive-phenomenological methodology. informants were selected based on purposive sampling criteria, with a total of nine informants. Interviews were conducted using a semi-structured interview technique, in the Sakatiga Village Health Center.  Results: The results of this study indicate that experiences of caring for palliative care patients vary; families, as a vital part of patient care, must be able to provide care for patients, even though family carers are likely to face various challenges, such as a lack of knowledge regarding care provision. The findings further examine the conditions of care provided at home, including: the assessment of the patient’s and family’s condition; the patient’s complaints regarding their condition; the family’s feelings towards the patient’s condition; the family’s coping mechanisms; dilemmas in meeting the patient’s care needs; and medical information required to understand the patient’s condition.  Conclusion: The results of this study indicate that families in providing palliative care need a forum to discuss, talk, and express their feelings while providing patient care at home. This is necessary because apart from being an important part of care, families are also required to always be able to carry out their functions optimally.
SN  - 2722-2837
SN  - 2830-1846
ER  -