Young adults with PIMD Polyhandicap in pediatric settings a situation more complex than problematic
Abstract
Profound Intellectual Multiple Disability (PIMD)/Polyhandicap, thanks to advances in medical management, are now reaching adulthood and have increased survival. Although, ten percent of the adults are cared for in paediatric facilities. The aims of this study were to assess 1) whether the profile of young adults in paediatric care differ from those in adult care on health characteristics, care organizations, and healthcare consumption. The study uses a cross-sectional design from the French Eval-PLH cohort: Two groups of young adults (18-35 years) with PIMD/Polyhandicap were defined according to the structure where they were care managed: paediatric vs adult facilities. Data collected: general health characteristics, care organization, and healthcare consumption. Young adults care managed for in paeditric facilities were significantly younger, had a lower body mass index, presented a less severe dependency status, presented a less severe health status, and were less often examined by a pneumologist, or a gynaecologist practitioner compared to adults care managed in adult facilities. The transition process from paediatric to adult care for persons with PIMD/Polyhandicap often occurs later, without any evident effect on the health outcomes and care provision.Clinical trial registration number NCT02400528 (February 2015).
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BibTeX
@article{rousseau2026young,
title = {{Young adults with PIMD Polyhandicap in pediatric settings a situation more complex than problematic}},
author = {Marie-Christine Rousseau and Sibylle Del-Duca and Any Beltran and Houria El Ouazzani and Ilyes Hamouda and Thierry Billette de Villemeur and Pascal Auquier and Sherezad Khaldi-Cherif and Anne-Emmanuelle Piquet-Massin and Agnès Felce and Lionel Dany and Narjess Boutalbi and Isabelle Kemlin and Julie Roger and Patrick Julien and Ponha Heng and Daniel Willocq and Maria Valkov and Stéphane Pietra and Stéphane Lenormand and Katia Lind and Kim Maincent and Marie-Anastasie Aim and Karine Baumstarck},
journal = {Scientific Reports},
year = {2026},
month = may,
doi = {10.1038/s41598-026-51457-3},
url = {https://hal.science/hal-05774143v1},
note = {CC BY-NC-ND},
}
RIS
TY - JOUR
TI - Young adults with PIMD Polyhandicap in pediatric settings a situation more complex than problematic
AU - Marie-Christine Rousseau
AU - Sibylle Del-Duca
AU - Any Beltran
AU - Houria El Ouazzani
AU - Ilyes Hamouda
AU - Thierry Billette de Villemeur
AU - Pascal Auquier
AU - Sherezad Khaldi-Cherif
AU - Anne-Emmanuelle Piquet-Massin
AU - Agnès Felce
AU - Lionel Dany
AU - Narjess Boutalbi
AU - Isabelle Kemlin
AU - Julie Roger
AU - Patrick Julien
AU - Ponha Heng
AU - Daniel Willocq
AU - Maria Valkov
AU - Stéphane Pietra
AU - Stéphane Lenormand
AU - Katia Lind
AU - Kim Maincent
AU - Marie-Anastasie Aim
AU - Karine Baumstarck
PY - 2026
DA - 2026/05/26
JO - Scientific Reports
DO - 10.1038/s41598-026-51457-3
UR - https://hal.science/hal-05774143v1
AB - Profound Intellectual Multiple Disability (PIMD)/Polyhandicap, thanks to advances in medical management, are now reaching adulthood and have increased survival. Although, ten percent of the adults are cared for in paediatric facilities. The aims of this study were to assess 1) whether the profile of young adults in paediatric care differ from those in adult care on health characteristics, care organizations, and healthcare consumption. The study uses a cross-sectional design from the French Eval-PLH cohort: Two groups of young adults (18-35 years) with PIMD/Polyhandicap were defined according to the structure where they were care managed: paediatric vs adult facilities. Data collected: general health characteristics, care organization, and healthcare consumption. Young adults care managed for in paeditric facilities were significantly younger, had a lower body mass index, presented a less severe dependency status, presented a less severe health status, and were less often examined by a pneumologist, or a gynaecologist practitioner compared to adults care managed in adult facilities. The transition process from paediatric to adult care for persons with PIMD/Polyhandicap often occurs later, without any evident effect on the health outcomes and care provision.Clinical trial registration number NCT02400528 (February 2015).
SN - 2045-2322
ER -