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Peer-reviewedLicence not statedJAMA Neurology

Global Epidemiology of Neonatal and Infantile-Onset Epilepsies and Epilepsy Syndromes (GENIE)

  • Mohammed Safeer V S1
  • Akanksha Singh1
  • Najiya Nahan1
  • Priyanka Madaan2
  • Sebastian F. Winter3,4,5
  • Manya Prasad6
  • Elaine C. Wirrell7
  • Ravindra Arya8,9,10,11
  • Raidah Albaradie12
  • Gus A. Baker13
  • Derrick Chan14
  • Alla Guekht15,16
19 more authors
  • Shinichi Hirose17
  • Yuwu Jiang18
  • Wang-Tso Lee19
  • Kheng Seang Lim20
  • Kazuhiro Muramatsu21
  • Kohei Nagai21
  • Kullasate Sakpichaisakul22
  • Pauline Samia23
  • Nicola Specchio24,25
  • Hasan Tekgul26
  • Chahnez Charfi Triki27
  • Kette Dualibi Ramos Valente28
  • Jithangi Wanigasinghe29
  • Jo Wilmshurst30
  • Ingrid E. Scheffer31
  • J. Helen Cross32,33
  • Valery Feigin34,35
  • Jitendra Kumar Sahu2
  • Dipika Bansal1
35 affiliations
  1. 1Department of Pharmacy Practice and Clinical Research, National Institute of Pharmaceutical Education and Research, SAS Nagar, India
  2. 2Pediatric Neurology Unit-II, Department of Pediatrics, Postgraduate Institute of Medical Education and Research, Chandigarh, India
  3. 3Division of Neuro-Oncology, Mass General Brigham Cancer Institute, Harvard Medical School, Boston, Massachusetts
  4. 4Division of Translation and Neurotechnology, Department of Psychiatry and Neurosciences, Charité–Universitätsmedizin Berlin, Berlin, Germany
  5. 5NeuroTech Open Innovation Hub, Charité BIH ARC Innovation Center, Charité–Universitätsmedizin Berlin, Berlin, Germany
  6. 6Centre for Community Medicine, All India Institute of Medical Science, New Delhi, India
  7. 7Division of Child and Adolescent Neurology, Department of Neurology, Mayo Clinic, Rochester, Minnesota
  8. 8Comprehensive Epilepsy Center, Division of Neurology, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio
  9. 9Department of Pediatrics, University of Cincinnati, Cincinnati, Ohio
  10. 10Department of Neurology, University of Cincinnati, Cincinnati, Ohio
  11. 11Department of Computer Science, University of Cincinnati, Cincinnati, Ohio
  12. 12King Fahad Specialist Hospital, Dammam, Saudi Arabia
  13. 13International Bureau for Epilepsy, Washington, DC
  14. 14KK Women’s and Children’s Hospital, Singapore
  15. 15Moscow Research and Clinical Center for Neuropsychiatry, Moscow, Russia
  16. 16Pirogov Russian National Research Medical University, Moscow, Russia
  17. 17General Medical Research Center School of Medicine, Fukuoka University, Fukuoka, Japan
  18. 18Children’s Medical Center, Peking University First Hospital, Beijing, China
  19. 19Department of Pediatric Neurology, National Taiwan University Children’s Hospital, Taipei, Taiwan
  20. 20Division of Neurology, Department of Medicine, Faculty of Medicine, Universiti Malaya, Kuala Lumpur, Malaysia
  21. 21Department of Pediatrics, Jichi Medical University, Shimotsuke City, Tochigi, Japan
  22. 22Department of Pediatrics, Queen Sirikit National Institute of Child Health, Ministry of Public Health, College of Medicine, Rangsit University, Bangkok, Thailand
  23. 23Department of Paediatrics, Medical College, Aga Khan University, Nairobi, Kenya
  24. 24Neurology, Epilepsy, and Movement Disorders Unit, Bambino Gesu Children’s Hospital, Full Member of European Reference Network for Rare and Complex Epilepsies, Istituto di Ricovero e Cura a Carattere Scientifico, Rome, Italy
  25. 25University Hospital KU Leuven, Leuven, Belgium
  26. 26Ege University Medical School, Izmir, Türkiye
  27. 27Department of Child Neurology, Hedi Chaker Hospital, Research Laboratory LR19ES15, University of Sfax, Sfax, Tunisia
  28. 28Center for Research, Pediatric Neurology, University of São Paulo, São Paulo, Brazil
  29. 29Department of Paediatrics, Faculty of Medicine, University of Colombo, Colombo, Sri Lanka
  30. 30Department of Paediatric Neurology, Red Cross War Memorial Children’s Hospital, Neuroscience Institute, University of Cape Town, Cape Town, South Africa
  31. 31The University of Melbourne, Austin Health, and Royal Children’s Hospital, Florey and Murdoch Children’s Research Institutes, Melbourne, Victoria, Australia
  32. 32University College London Great Ormond Street Institute of Child Health, National Institute for Health and Care Research Great Ormond Street Hospital for Children Biomedical Research Centre, London, United Kingdom
  33. 33Young Epilepsy, Lingfield, United Kingdom
  34. 34National Institute for Stroke and Applied Neurosciences, School of Community and Public Health Studies, Auckland University of Technology, Auckland, New Zealand
  35. 35Institute for Health Metrics and Evaluation, University of Washington, Seattle
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Cite

BibTeXRIS
BibTeX
@article{v2026global,
  title = {{Global Epidemiology of Neonatal and Infantile-Onset Epilepsies and Epilepsy Syndromes (GENIE)}},
  author = {Mohammed Safeer V S and Akanksha Singh and Najiya Nahan and Priyanka Madaan and Sebastian F. Winter and Manya Prasad and Elaine C. Wirrell and Ravindra Arya and Raidah Albaradie and Gus A. Baker and Derrick Chan and Alla Guekht and Shinichi Hirose and Yuwu Jiang and Wang-Tso Lee and Kheng Seang Lim and Kazuhiro Muramatsu and Kohei Nagai and Kullasate Sakpichaisakul and Pauline Samia and Nicola Specchio and Hasan Tekgul and Chahnez Charfi Triki and Kette Dualibi Ramos Valente and Jithangi Wanigasinghe and Jo Wilmshurst and Ingrid E. Scheffer and J. Helen Cross and Valery Feigin and Jitendra Kumar Sahu and Dipika Bansal},
  journal = {JAMA Neurology},
  year = {2026},
  month = nov,
  doi = {10.1001/jamaneurol.2026.3906},
  url = {https://doi.org/10.1001/jamaneurol.2026.3906},
}
RIS
TY  - JOUR
TI  - Global Epidemiology of Neonatal and Infantile-Onset Epilepsies and Epilepsy Syndromes (GENIE)
AU  - Mohammed Safeer V S
AU  - Akanksha Singh
AU  - Najiya Nahan
AU  - Priyanka Madaan
AU  - Sebastian F. Winter
AU  - Manya Prasad
AU  - Elaine C. Wirrell
AU  - Ravindra Arya
AU  - Raidah Albaradie
AU  - Gus A. Baker
AU  - Derrick Chan
AU  - Alla Guekht
AU  - Shinichi Hirose
AU  - Yuwu Jiang
AU  - Wang-Tso Lee
AU  - Kheng Seang Lim
AU  - Kazuhiro Muramatsu
AU  - Kohei Nagai
AU  - Kullasate Sakpichaisakul
AU  - Pauline Samia
AU  - Nicola Specchio
AU  - Hasan Tekgul
AU  - Chahnez Charfi Triki
AU  - Kette Dualibi Ramos Valente
AU  - Jithangi Wanigasinghe
AU  - Jo Wilmshurst
AU  - Ingrid E. Scheffer
AU  - J. Helen Cross
AU  - Valery Feigin
AU  - Jitendra Kumar Sahu
AU  - Dipika Bansal
PY  - 2026
DA  - 2026/11/02
JO  - JAMA Neurology
DO  - 10.1001/jamaneurol.2026.3906
UR  - https://doi.org/10.1001/jamaneurol.2026.3906
SN  - 2168-6149
SN  - 2168-6157
ER  -