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Peer-reviewedCC BY 4.0Journal of Cross-Cultural Gerontology

Relationship between Profile, Quality of Life and Burden of Older People With Dementia’s Caregivers during the COVID-19 Pandemic

  • Renata Carolina Gerassi1
  • Larissa Pires de Andrade1
  • Carolina Tsen1
  • Maria Juana Beatriz Lima Candanedo2
  • Jessica Bianca Aily1
  • Ana Beatriz Simões Pereira2
  • Grace Angélica de Oliveira Gomes2
  • Juliana Hotta Ansai2
  1. 1Department of Physical Therapy, Federal University of São Carlos, São Carlos, Brazil
  2. 2Department of Gerontology, Federal University of São Carlos, São Carlos, 13565-905 Brazil
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Abstract

This study was to verify the quality of life and caregiver burden of older people with dementia during the Severe Acute Respiratory Syndrome (COVID-19) pandemic, and the clinical and sociodemographic factors associated with them. This cross-sectional study was conducted remotely and included Brazilian older people with a mild to moderate stage of dementia and their family caregivers. The caregivers reported older people’s clinical and sociodemographic characteristics. Caregiver characteristics were also collected. The sample comprised 37 pairs of older adults and caregivers, involving older adults with a mean age of 77.5 years old and caregivers who were mostly women (86.5%). Only caregiver years of study and caregiver burden significantly influenced caregiver quality of life. Caregiver distress related to older people’s behavior symptoms, older people’s behavioral symptoms and caregiver quality of life influenced caregiver burden. These caregivers have a fair quality of life and moderate to mild burden during the COVID-19 pandemic. The fewer years of study, the higher quality of life the caregiver presents. The lower caregiver quality of life, the higher caregiver distress related to behavioral symptoms, and the older people’s behavioral symptoms, the higher the caregiver burden is.

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Cite

BibTeXRIS
BibTeX
@article{gerassi2026relationship,
  title = {{Relationship between Profile, Quality of Life and Burden of Older People With Dementia’s Caregivers during the COVID-19 Pandemic}},
  author = {Renata Carolina Gerassi and Larissa Pires de Andrade and Carolina Tsen and Maria Juana Beatriz Lima Candanedo and Jessica Bianca Aily and Ana Beatriz Simões Pereira and Grace Angélica de Oliveira Gomes and Juliana Hotta Ansai},
  journal = {Journal of Cross-Cultural Gerontology},
  year = {2026},
  month = nov,
  doi = {10.1007/s10823-026-09605-9},
  url = {https://doi.org/10.1007/s10823-026-09605-9},
  note = {CC BY 4.0},
}
RIS
TY  - JOUR
TI  - Relationship between Profile, Quality of Life and Burden of Older People With Dementia’s Caregivers during the COVID-19 Pandemic
AU  - Renata Carolina Gerassi
AU  - Larissa Pires de Andrade
AU  - Carolina Tsen
AU  - Maria Juana Beatriz Lima Candanedo
AU  - Jessica Bianca Aily
AU  - Ana Beatriz Simões Pereira
AU  - Grace Angélica de Oliveira Gomes
AU  - Juliana Hotta Ansai
PY  - 2026
DA  - 2026/11/03
JO  - Journal of Cross-Cultural Gerontology
DO  - 10.1007/s10823-026-09605-9
UR  - https://doi.org/10.1007/s10823-026-09605-9
AB  - This study was to verify the quality of life and caregiver burden of older people with dementia during the Severe Acute Respiratory Syndrome (COVID-19) pandemic, and the clinical and sociodemographic factors associated with them. This cross-sectional study was conducted remotely and included Brazilian older people with a mild to moderate stage of dementia and their family caregivers. The caregivers reported older people’s clinical and sociodemographic characteristics. Caregiver characteristics were also collected. The sample comprised 37 pairs of older adults and caregivers, involving older adults with a mean age of 77.5 years old and caregivers who were mostly women (86.5%). Only caregiver years of study and caregiver burden significantly influenced caregiver quality of life. Caregiver distress related to older people’s behavior symptoms, older people’s behavioral symptoms and caregiver quality of life influenced caregiver burden. These caregivers have a fair quality of life and moderate to mild burden during the COVID-19 pandemic. The fewer years of study, the higher quality of life the caregiver presents. The lower caregiver quality of life, the higher caregiver distress related to behavioral symptoms, and the older people’s behavioral symptoms, the higher the caregiver burden is.
SN  - 0169-3816
SN  - 1573-0719
ER  -