Recorrido y barreras en el acceso a diagnóstico y tratamiento de la enfermedad de Chagas en Argentina: un mapa desde la experiencia de las personas The journey and barriers to accessing diagnosis and treatment for Chagas disease in Argentina: a patient journey map based on people’s experiences Percurso e barreiras no acesso ao diagnóstico e ao tratamento da doença de Chagas na Argentina: um panorama a partir de experiências pessoais
- 1Fundación Mundo Sano, Buenos Aires, Argentina.
- 2Fundación Mundo Sano, Madrid, España.
Abstract
Chagas disease is endemic in the Americas. In Argentina, approximately 750,000 people are living with Chagas disease. With a prevalence of 1.59 per 100 inhabitants, it is considered a public health problem. This study presents the development of a patient journey map based on the experiences of individuals with suspected Chagas disease. We analyzed the records of 205 patients who sought care through a support program for individuals with concerns about Chagas disease in Argentina. By systematizing personal experiences through qualitative analysis, we were able to highlight the critical points of contact between patients and the healthcare system during the diagnosis and treatment process, thereby identifying barriers to accessing the healthcare services. The main contribution of this analysis is to demonstrate that systemic barriers outweigh personal barriers as obstacles to accessing diagnosis and, above all, treatment. The most significant barrier proved to be incorrect or insufficient information provided by healthcare professionals, which points to targeted training initiatives for healthcare teams as a strategy for improving access to treatment.
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BibTeX
@article{moyano2026recorrido,
title = {{Recorrido y barreras en el acceso a diagnóstico y tratamiento de la enfermedad de Chagas en Argentina: un mapa desde la experiencia de las personas The journey and barriers to accessing diagnosis and treatment for Chagas disease in Argentina: a patient journey map based on people’s experiences Percurso e barreiras no acesso ao diagnóstico e ao tratamento da doença de Chagas na Argentina: um panorama a partir de experiências pessoais}},
author = {Serena Eloisa Moyano and Catalina Canosa and Milagros Girart and Marina Gold and Carolina Lopez-Ferloni},
journal = {Cadernos de saude publica},
year = {2026},
month = oct,
doi = {10.1590/0102-311xes251025},
url = {https://europepmc.org/article/PMC/PMC13706635},
note = {CC BY},
}
RIS
TY - JOUR
TI - Recorrido y barreras en el acceso a diagnóstico y tratamiento de la enfermedad de Chagas en Argentina: un mapa desde la experiencia de las personas The journey and barriers to accessing diagnosis and treatment for Chagas disease in Argentina: a patient journey map based on people’s experiences Percurso e barreiras no acesso ao diagnóstico e ao tratamento da doença de Chagas na Argentina: um panorama a partir de experiências pessoais
AU - Serena Eloisa Moyano
AU - Catalina Canosa
AU - Milagros Girart
AU - Marina Gold
AU - Carolina Lopez-Ferloni
PY - 2026
DA - 2026/10/26
JO - Cadernos de saude publica
DO - 10.1590/0102-311xes251025
UR - https://europepmc.org/article/PMC/PMC13706635
AB - Chagas disease is endemic in the Americas. In Argentina, approximately 750,000 people are living with Chagas disease. With a prevalence of 1.59 per 100 inhabitants, it is considered a public health problem. This study presents the development of a patient journey map based on the experiences of individuals with suspected Chagas disease. We analyzed the records of 205 patients who sought care through a support program for individuals with concerns about Chagas disease in Argentina. By systematizing personal experiences through qualitative analysis, we were able to highlight the critical points of contact between patients and the healthcare system during the diagnosis and treatment process, thereby identifying barriers to accessing the healthcare services. The main contribution of this analysis is to demonstrate that systemic barriers outweigh personal barriers as obstacles to accessing diagnosis and, above all, treatment. The most significant barrier proved to be incorrect or insufficient information provided by healthcare professionals, which points to targeted training initiatives for healthcare teams as a strategy for improving access to treatment.
SN - 0102-311X
SN - 1678-4464
ER -