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Peer-reviewedCC BYClinics and practice

The Lived Care Experiences of Neurorehabilitation Inpatients: A Phenomenological Qualitative Exploratory Study.

6 affiliations
  1. 1Immunology and Molecular Oncology Diagnostics Unit, Veneto Institute of Oncology, Via Gattamelata 64, 35128 Padova, Italy.
  2. 2General Surgery, University Hospital of Padua, Via Giustiniani 2, 35128 Padova, Italy.
  3. 3Intensive Care, AULSS 1 Dolomiti, Via Bagnols Sur Cèzè, 1, 32032 Feltre, Italy.
  4. 4Neuropsychology Laboratory, IRCCS San Camillo Hospital, Via Alberoni 70, 30126 Venice, Italy.
  5. 5IRCCS San Camillo Hospital, Via Alberoni 70, 30126 Venice, Italy.
  6. 6Laboratory of Healthcare Innovation Technology, IRCCS San Camillo Hospital, Via Alberoni 70, 30126 Venice, Italy.

Abstract

Background and Aim: Hospitalization is increasingly seen as a key factor in rehabilitation outcomes, shaped by patient satisfaction, motivation, and relationships with staff. The lived experience of neurorehabilitation across neurological conditions, such as stroke, multiple sclerosis, Parkinson's disease, and post-oncological care, remains largely unknown. This study explores the care and hospitalization experience of individuals admitted to neurorehabilitation units with diagnoses of stroke, multiple sclerosis, Parkinson's disease, and post-neurosurgical recovery following oncological procedures. Methods: Thirty-seven patients with neurological conditions were enrolled and interviewed. A descriptive phenomenological design was employed, using semi-structured interviews. Data were analyzed following Colaizzi's method, supported by Atlas.ti 25. Phenomenological analysis was used to identify themes emerging from patient narratives, with rigor ensured through independent coding, triangulation, and saturation-based sampling. Results: Five themes emerged: (1) the therapeutic bond with healthcare professionals; (2) the slow time of hospitalization, marked by waiting and boredom; (3) care is rehabilitation; (4) illness narratives; and (5) stories of closeness among inpatients and family members. Conclusions: The results of this study highlight neurorehabilitation as a relational process. These findings reinforce the importance of considering patients' experiences as an integral component of neurorehabilitation hospitalization. Future research should further explore how these dimensions may contribute to the development of more person-centered approaches to neurorehabilitation.

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BibTeX
@article{camuccio2026lived,
  title = {{The Lived Care Experiences of Neurorehabilitation Inpatients: A Phenomenological Qualitative Exploratory Study.}},
  author = {Carlo Alberto Camuccio and Valeria Basso and Sara Guglielmi and Laura Danesin and Francesca Burgio and Enrico Dal Pozzo and Luisa Cacciante},
  journal = {Clinics and practice},
  year = {2026},
  month = sep,
  doi = {10.3390/clinpract16100177},
  url = {https://europepmc.org/article/MED/42930363},
  note = {CC BY},
}
RIS
TY  - JOUR
TI  - The Lived Care Experiences of Neurorehabilitation Inpatients: A Phenomenological Qualitative Exploratory Study.
AU  - Carlo Alberto Camuccio
AU  - Valeria Basso
AU  - Sara Guglielmi
AU  - Laura Danesin
AU  - Francesca Burgio
AU  - Enrico Dal Pozzo
AU  - Luisa Cacciante
PY  - 2026
DA  - 2026/09/24
JO  - Clinics and practice
DO  - 10.3390/clinpract16100177
UR  - https://europepmc.org/article/MED/42930363
AB  - Background and Aim: Hospitalization is increasingly seen as a key factor in rehabilitation outcomes, shaped by patient satisfaction, motivation, and relationships with staff. The lived experience of neurorehabilitation across neurological conditions, such as stroke, multiple sclerosis, Parkinson's disease, and post-oncological care, remains largely unknown. This study explores the care and hospitalization experience of individuals admitted to neurorehabilitation units with diagnoses of stroke, multiple sclerosis, Parkinson's disease, and post-neurosurgical recovery following oncological procedures. Methods: Thirty-seven patients with neurological conditions were enrolled and interviewed. A descriptive phenomenological design was employed, using semi-structured interviews. Data were analyzed following Colaizzi's method, supported by Atlas.ti 25. Phenomenological analysis was used to identify themes emerging from patient narratives, with rigor ensured through independent coding, triangulation, and saturation-based sampling. Results: Five themes emerged: (1) the therapeutic bond with healthcare professionals; (2) the slow time of hospitalization, marked by waiting and boredom; (3) care is rehabilitation; (4) illness narratives; and (5) stories of closeness among inpatients and family members. Conclusions: The results of this study highlight neurorehabilitation as a relational process. These findings reinforce the importance of considering patients' experiences as an integral component of neurorehabilitation hospitalization. Future research should further explore how these dimensions may contribute to the development of more person-centered approaches to neurorehabilitation.
SN  - 2039-7275
SN  - 2039-7283
ER  -