How Latine Families Navigate Pediatric Loss Amid Broken Systems
- 1Author Affiliations: Department of Nursing, Duke University School of Nursing, Durham, NC (Buzelli, Oyesanya, and Gonzalez-Guarda); and Department of Pediatric Palliative Care, Nicklaus Children’s Hospital, Miami, FL (Aguilar).
Abstract
This study explored the challenges and strengths shaping Latine families’ experiences of pediatric loss in the United States context. Eighteen semistructured interviews with healthcare providers (n = 7) and bereaved Latine caregivers (n = 11) were carried out using an integrated qualitative descriptive and Liberation Psychology approach. Four themes emerged that are heavily shaped by individual and contextual factors: (1) Unsupportive and hegemonic systems, (2) caregiver and provider discordance regarding end-of-life care, (3) caregiver identity transcendence in the “natural distress of grief,” and (4) supportive networks and their limitations. Results highlight sociocultural realities that inform needed structural, policy, and practice changes.
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BibTeX
@article{buzelli2026latine,
title = {{How Latine Families Navigate Pediatric Loss Amid Broken Systems}},
author = {Patricia Buzelli and Tolu O. Oyesanya and Angelli Aguilar and Rosa M. Gonzalez-Guarda},
journal = {Ans. Advances in Nursing Science},
year = {2026},
month = aug,
doi = {10.1097/ans.0000000000000690},
url = {https://doi.org/10.1097/ans.0000000000000690},
note = {CC BY-NC-ND 4.0},
}
RIS
TY - JOUR
TI - How Latine Families Navigate Pediatric Loss Amid Broken Systems
AU - Patricia Buzelli
AU - Tolu O. Oyesanya
AU - Angelli Aguilar
AU - Rosa M. Gonzalez-Guarda
PY - 2026
DA - 2026/08/04
JO - Ans. Advances in Nursing Science
DO - 10.1097/ans.0000000000000690
UR - https://doi.org/10.1097/ans.0000000000000690
AB - This study explored the challenges and strengths shaping Latine families’ experiences of pediatric loss in the United States context. Eighteen semistructured interviews with healthcare providers (n = 7) and bereaved Latine caregivers (n = 11) were carried out using an integrated qualitative descriptive and Liberation Psychology approach. Four themes emerged that are heavily shaped by individual and contextual factors: (1) Unsupportive and hegemonic systems, (2) caregiver and provider discordance regarding end-of-life care, (3) caregiver identity transcendence in the “natural distress of grief,” and (4) supportive networks and their limitations. Results highlight sociocultural realities that inform needed structural, policy, and practice changes.
SN - 0161-9268
SN - 1550-5014
ER -