Pathways to progress: navigating the evolving field of PIDs and associated conditions — proceedings from the IPOPI Global Multi-Stakeholders’ Summit (July 2025)
Abstract
IntroductionIn July 2025, the International Patient Organisation for Primary Immunodeficiencies (IPOPI) held its fourth consecutive Global Multi-Stakeholders’ Summit, bringing together key stakeholders and experts in primary immunodeficiencies (PIDs) and related fields to discuss current challenges and opportunities for improving patient care.MethodsThis edition focused on current and projected trends to 2035 in artificial intelligence and quantum computing, the gap between primary and secondary immunodeficiencies, and the role of preventive medicine in patients’ quality of life.ResultsStakeholders from all around the world gathered to examine current knowledge gaps, needs and avenues to improve the care of patients with immunodeficiency in the next ten years.DiscussionRecommendations on how digital technologies can contribute to equitable access to innovative therapies are proposed. Mechanisms by which multidisciplinary teams can work together to improve the care of patients with immunodeficiencies are outlined, including how innovative screening and care plans can reduce the risk of multiorgan involvement and complications in these patients. Within the next decade, digital tools in conjunction with improved multistakeholder collaborations is most likely to contribute to the collection of standardised data, inclusive studies, and personalised treatments that will prolong, with quality, the lives of patients with immunodeficiencies.
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BibTeX
@article{mamede2026pathways,
title = {{Pathways to progress: navigating the evolving field of PIDs and associated conditions — proceedings from the IPOPI Global Multi-Stakeholders’ Summit (July 2025)}},
author = {Lúcia Mamede and Roser Cantenys Sabà and Johan Prévot and Sebastian Feld and Nicolas Garcelon and Mathieu Corteel and Matthew Hotchko and Silvia Sánchez-Ramón and Elena Cabezudo and Martin Larsen and Aleksandra Badura and Rita Carsetti and Adli Ali and Ibtihal Benhsaien and Tadej Avcin and Nicholas L. Rider and David M. Lowe and Siobhan O. Burns and Martin van Hagen and Roberta Anido de Pena and Martine Pergent and Jacques G. Rivière and Nizar Mahlaoui},
journal = {Frontiers in Immunology},
year = {2026},
month = nov,
doi = {10.3389/fimmu.2026.2009968},
url = {https://www.frontiersin.org/articles/10.3389/fimmu.2026.2009968},
note = {CC BY 4.0},
}
RIS
TY - JOUR
TI - Pathways to progress: navigating the evolving field of PIDs and associated conditions — proceedings from the IPOPI Global Multi-Stakeholders’ Summit (July 2025)
AU - Lúcia Mamede
AU - Roser Cantenys Sabà
AU - Johan Prévot
AU - Sebastian Feld
AU - Nicolas Garcelon
AU - Mathieu Corteel
AU - Matthew Hotchko
AU - Silvia Sánchez-Ramón
AU - Elena Cabezudo
AU - Martin Larsen
AU - Aleksandra Badura
AU - Rita Carsetti
AU - Adli Ali
AU - Ibtihal Benhsaien
AU - Tadej Avcin
AU - Nicholas L. Rider
AU - David M. Lowe
AU - Siobhan O. Burns
AU - Martin van Hagen
AU - Roberta Anido de Pena
AU - Martine Pergent
AU - Jacques G. Rivière
AU - Nizar Mahlaoui
PY - 2026
DA - 2026/11/06
JO - Frontiers in Immunology
DO - 10.3389/fimmu.2026.2009968
UR - https://www.frontiersin.org/articles/10.3389/fimmu.2026.2009968
AB - IntroductionIn July 2025, the International Patient Organisation for Primary Immunodeficiencies (IPOPI) held its fourth consecutive Global Multi-Stakeholders’ Summit, bringing together key stakeholders and experts in primary immunodeficiencies (PIDs) and related fields to discuss current challenges and opportunities for improving patient care.MethodsThis edition focused on current and projected trends to 2035 in artificial intelligence and quantum computing, the gap between primary and secondary immunodeficiencies, and the role of preventive medicine in patients’ quality of life.ResultsStakeholders from all around the world gathered to examine current knowledge gaps, needs and avenues to improve the care of patients with immunodeficiency in the next ten years.DiscussionRecommendations on how digital technologies can contribute to equitable access to innovative therapies are proposed. Mechanisms by which multidisciplinary teams can work together to improve the care of patients with immunodeficiencies are outlined, including how innovative screening and care plans can reduce the risk of multiorgan involvement and complications in these patients. Within the next decade, digital tools in conjunction with improved multistakeholder collaborations is most likely to contribute to the collection of standardised data, inclusive studies, and personalised treatments that will prolong, with quality, the lives of patients with immunodeficiencies.
SN - 1664-3224
ER -