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PreprintCC BYmedRxiv

Patients' Experiences in a Dialogue-Based Outpatient Clinic Embedded Within Routine Oncology Care

  1. 1Osaka Saiseikai Nakatsu Hospital

Abstract

ObjectivesContemporary oncology has achieved remarkable advances in biomedical treatment while increasingly emphasizing patient-centered care. Nevertheless, routine oncology consultations must address multiple competing clinical priorities, potentially limiting opportunities for patients experiences to become visible. To address this gap, we established a Dialogue-Based Outpatient Clinic, a complementary patient-directed consultation model embedded within routine oncology care. This study explored the dimensions of patients experiences that became visible through this consultation model.

MethodsWe conducted a qualitative study of 44 consecutive patients who attended a Dialogue-Based Outpatient Clinic embedded within routine oncology care between 2021 and 2023. Patients attended the clinic either on their own initiative or following a recommendation from a healthcare professional who recognized that they were struggling. Regardless of how they came to the clinic, patients independently determined the consultation agenda.

ResultsOf the 44 patients, 13 (29.5%) sought biomedical information regarding diagnosis, treatment, or adverse effects, whereas 31 (70.5%) discussed concerns extending beyond biomedical issues. Reflexive thematic analysis of these 31 patients identified four interconnected themes: (1) making sense of a cancer diagnosis within ones own life; (2) negotiating treatment in relation to personal values and life priorities; (3) being treated for disease but not seen as a person; and (4) reconstructing life and identity through the cancer journey. Across all themes, patient-directed dialogue consistently revealed how patients understood cancer within the broader context of their lives rather than as an isolated biomedical condition.

ConclusionsPatient-directed dialogue within routine oncology care revealed dimensions of patients experiences that may be less readily recognized in conventional consultations. A complementary consultation model that allows patients to determine the agenda may provide opportunities for these experiences to become clinically recognizable.

Practice implications: Integrating patient-directed consultations into routine oncology care may provide clinicians with opportunities to recognize and address patients concerns that might otherwise remain outside the usual consultation agenda.

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BibTeX
@misc{yoshimura2026patients,
  title = {{Patients' Experiences in a Dialogue-Based Outpatient Clinic Embedded Within Routine Oncology Care}},
  author = {K. Yoshimura and S. Fujioka and P. M. Lewis and M. Hirata and M. Tani and K. Akazawa and N. Kohno},
  howpublished = {medRxiv},
  year = {2026},
  month = oct,
  doi = {10.64898/2026.10.01.26364357},
  url = {https://www.medrxiv.org/content/10.64898/2026.10.01.26364357v1},
  note = {CC BY},
}
RIS
TY  - UNPB
TI  - Patients' Experiences in a Dialogue-Based Outpatient Clinic Embedded Within Routine Oncology Care
AU  - K. Yoshimura
AU  - S. Fujioka
AU  - P. M. Lewis
AU  - M. Hirata
AU  - M. Tani
AU  - K. Akazawa
AU  - N. Kohno
PY  - 2026
DA  - 2026/10/01
PB  - medRxiv
DO  - 10.64898/2026.10.01.26364357
UR  - https://www.medrxiv.org/content/10.64898/2026.10.01.26364357v1
AB  - ObjectivesContemporary oncology has achieved remarkable advances in biomedical treatment while increasingly emphasizing patient-centered care. Nevertheless, routine oncology consultations must address multiple competing clinical priorities, potentially limiting opportunities for patients experiences to become visible. To address this gap, we established a Dialogue-Based Outpatient Clinic, a complementary patient-directed consultation model embedded within routine oncology care. This study explored the dimensions of patients experiences that became visible through this consultation model.  MethodsWe conducted a qualitative study of 44 consecutive patients who attended a Dialogue-Based Outpatient Clinic embedded within routine oncology care between 2021 and 2023. Patients attended the clinic either on their own initiative or following a recommendation from a healthcare professional who recognized that they were struggling. Regardless of how they came to the clinic, patients independently determined the consultation agenda.  ResultsOf the 44 patients, 13 (29.5%) sought biomedical information regarding diagnosis, treatment, or adverse effects, whereas 31 (70.5%) discussed concerns extending beyond biomedical issues. Reflexive thematic analysis of these 31 patients identified four interconnected themes: (1) making sense of a cancer diagnosis within ones own life; (2) negotiating treatment in relation to personal values and life priorities; (3) being treated for disease but not seen as a person; and (4) reconstructing life and identity through the cancer journey. Across all themes, patient-directed dialogue consistently revealed how patients understood cancer within the broader context of their lives rather than as an isolated biomedical condition.  ConclusionsPatient-directed dialogue within routine oncology care revealed dimensions of patients experiences that may be less readily recognized in conventional consultations. A complementary consultation model that allows patients to determine the agenda may provide opportunities for these experiences to become clinically recognizable.  Practice implications: Integrating patient-directed consultations into routine oncology care may provide clinicians with opportunities to recognize and address patients concerns that might otherwise remain outside the usual consultation agenda.
ER  -