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Peer-reviewedCC BY-NC 4.0Journal of the International Association of Providers of AIDS Care

Support Groups for Caregivers of Adolescents With HIV - A Qualitative Analysis of Caregivers’ Experiences in Mozambique

  • Joana Falcão1,2
  • Jennifer M. Belus2,3,4
  • Ricardino Zandamela1
  • Niklaus D. Labhardt2
  • Aleny Couto5
  • Allison Zerbe6
  • Eduarda Pimental De Gusmão1
  • Maja Weisser7
  • Elaine J. Abrams6,8
8 affiliations
  1. 1Mailman School of Public Health, ICAP at Columbia University, Maputo, Mozambique
  2. 2Clinical Epidemiology, Department of Clinical Research, University and University Hospital Basel, Basel, Switzerland
  3. 3Department of Psychology, University of Zurich, Zurich, Switzerland
  4. 4Faculty of Medicine, University of Zurich, Zurich, Switzerland
  5. 5National STI, HIV/AIDS Control Program, Maputo, Mozambique
  6. 6Mailman School of Public Health, ICAP at Columbia University, New York, USA
  7. 7Division of Infectious Diseases, University Hospital Basel, Basel, Switzerland
  8. 8Department of Pediatrics, Vagelos College of Physicians and Surgeons, Columbia University, New York, USA
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Abstract

Background: Families are the primary source of care during adolescence, when HIV management is shared between adolescents with HIV (AHIV) and caregivers. Peer support interventions that improve caregiver well-being may strengthen AHIV self-management.

Methods: We conducted qualitative interviews with caregivers of AHIV to explore how peer group participation influenced support for AHIV self-management. This was a substudy from the CombinADO trial, which, from 2018 to 2023, evaluated an intervention to improve viral suppression among adolescents and young adults with HIV in Mozambique.

Results: 53 caregivers were interviewed (median age 37; 74% female). Caregivers reported enhanced knowledge of disease and treatment clarified HIV negative beliefs augmented AHIV treatment adherence monitoring psychosocial changes, and improved caregiver-adolescent relationship quality.

Conclusions: Support groups for caregivers could strengthen caregivers’ role in supporting AHIV self-management. Expanding caregiver support groups may improve HIV care for AHIV in Mozambique and similar settings.

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Cite

BibTeXRIS
BibTeX
@article{falcao2026support,
  title = {{Support Groups for Caregivers of Adolescents With HIV - A Qualitative Analysis of Caregivers’ Experiences in Mozambique}},
  author = {Joana Falcão and Jennifer M. Belus and Ricardino Zandamela and Niklaus D. Labhardt and Aleny Couto and Allison Zerbe and Eduarda Pimental De Gusmão and Maja Weisser and Elaine J. Abrams},
  journal = {Journal of the International Association of Providers of AIDS Care},
  year = {2026},
  month = sep,
  doi = {10.1177/23259582261471850},
  url = {https://doi.org/10.1177/23259582261471850},
  note = {CC BY-NC 4.0},
}
RIS
TY  - JOUR
TI  - Support Groups for Caregivers of Adolescents With HIV - A Qualitative Analysis of Caregivers’ Experiences in Mozambique
AU  - Joana Falcão
AU  - Jennifer M. Belus
AU  - Ricardino Zandamela
AU  - Niklaus D. Labhardt
AU  - Aleny Couto
AU  - Allison Zerbe
AU  - Eduarda Pimental De Gusmão
AU  - Maja Weisser
AU  - Elaine J. Abrams
PY  - 2026
DA  - 2026/09/23
JO  - Journal of the International Association of Providers of AIDS Care
DO  - 10.1177/23259582261471850
UR  - https://doi.org/10.1177/23259582261471850
AB  - Background: Families are the primary source of care during adolescence, when HIV management is shared between adolescents with HIV (AHIV) and caregivers. Peer support interventions that improve caregiver well-being may strengthen AHIV self-management.  Methods: We conducted qualitative interviews with caregivers of AHIV to explore how peer group participation influenced support for AHIV self-management. This was a substudy from the CombinADO trial, which, from 2018 to 2023, evaluated an intervention to improve viral suppression among adolescents and young adults with HIV in Mozambique.  Results: 53 caregivers were interviewed (median age 37; 74% female). Caregivers reported enhanced knowledge of disease and treatment clarified HIV negative beliefs augmented AHIV treatment adherence monitoring psychosocial changes, and improved caregiver-adolescent relationship quality.  Conclusions: Support groups for caregivers could strengthen caregivers’ role in supporting AHIV self-management. Expanding caregiver support groups may improve HIV care for AHIV in Mozambique and similar settings.
SN  - 2325-9574
SN  - 2325-9582
ER  -