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Peer-reviewedCC BY-NCDementia and neurocognitive disorders

Changes in Caregiver Burden, Psychological Distress, and Depressive Symptoms Following a Physician-Led Standardized Counseling and Education Program for Caregivers of Patients With Dementia and Mild Cognitive Impairment: A Multicenter Pre-Post Study.

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25 affiliations
  1. 1Department of Neurology, Ewha Womans University College of Medicine, Seoul, Korea.
  2. 2Department of Neurology, Ewha Womans University Mokdong Hospital, Seoul, Korea.
  3. 3Department of Neurology, Inha University College of Medicine, Incheon, Korea.
  4. 4Department of Neurology, Yongin Severance Hospital, Yonsei University College of Medicine, Yongin, Korea.
  5. 5Department of Neurology, Uijeongbu St. Mary's Hospital, College of Medicine, The Catholic University of Korea, Uijeongbu, Korea.
  6. 6Department of Neurology, Dongsuwon General Hospital, Suwon, Korea.
  7. 7Department of Neurology, Konkuk University Medical Center, Seoul, Korea.
  8. 8Department of Neurology, Ewha Womans University Seoul Hospital, Seoul, Korea.
  9. 9Department of Neurology, Pusan National University Hospital, Pusan National University School of Medicine and Medical Research Institute, Busan, Korea.
  10. 10Department of Neurology, College of Medicine, Hanyang University, Seoul, Korea.
  11. 11Department of Neurology, Jeonbuk National University Medical School and Hospital, Jeonju, Korea.
  12. 12Department of Neurology, International St. Mary's Hospital, Catholic Kwandong University College of Medicine, Incheon, Korea.
  13. 13Department of Neurology, Heavenly Hospital, Goyang, Korea.
  14. 14Department of Neurology, National Medical Center, Seoul, Korea.
  15. 15National Institute of Dementia, National Medical Center, Seoul, Korea.
  16. 16Department of Neurology, Ajou University School of Medicine, Suwon, Korea.
  17. 17Department of Neurology, Samsung Medical Center, Sungkyunkwan University School of Medicine, Seoul, Korea.
  18. 18Bobath Memorial Hospital, Seongnam, Korea.
  19. 19Department of Neurology, Incheon St. Mary's Hospital, College of Medicine, The Catholic University of Korea, Incheon, Korea.
  20. 20Department of Neurology, Haeundae Paik Hospital, Inje University College of Medicine, Busan, Korea.
  21. 21Department of Neurology, Gachon University Gil Medical Center, College of Medicine, Gachon University, Incheon, Korea.
  22. 22Department of Neurology, Korea University Anam Hospital, Seoul, Korea.
  23. 23Department of Neurology, St. Vincent's Hospital, College of Medicine, The Catholic University of Korea, Suwon, Korea.
  24. 24Department of Neurology, Seoul St. Mary's Hospital, College of Medicine, The Catholic University of Korea, Seoul, Korea.
  25. 25Department of Neurology, Daejeon Eulji Medical Center, Eulji University, Daejeon, Korea.

Abstract

Background and purpose

Family caregivers of people with dementia carry psychological burden, yet brief physician-delivered caregiver counseling within routine hospital care is neither standardized nor routinely reimbursed in Korea. We evaluated changes in caregiver distress, burden, and depressive symptoms after a structured, hospital-based counseling and education program delivered by physicians.Methods

This secondary analysis used data from a Korean Dementia Association multicenter pilot project at 25 hospitals. Primary caregivers of patients with mild cognitive impairment or dementia completed a 6-item distress checklist, the 4-item Zarit Burden Interview (ZBI), and the 15-item Short-Form Geriatric Depression Scale (SGDepS) before and within 7 days after a single session (45 minutes). Pre-post changes were tested with Wilcoxon signed-rank tests; baseline-adjusted and multivariable regression models explored characteristics associated with change.Results

Of 210 caregivers, 202 completed both assessments (mean age 59.7 years; 70.3% female; 54.5% spouses). Mean scores decreased from 1.916 to 1.535 for distress, 6.114 to 5.104 for ZBI, and 4.406 to 3.604 for SGDepS (all p<0.001), with reductions in 31.2%, 51.0%, and 44.6% of caregivers, respectively. No patient or caregiver characteristic was associated with the magnitude of change after baseline adjustment. Satisfaction was high (4.3±0.8 of 5) and weakly correlated with greater reductions in distress (ρ=-0.17) and burden (ρ=-0.16).Conclusions

A brief, physician-led caregiver counseling program using standardized materials with tailored module selection, integrated into hospital dementia care was followed by short-term reductions in caregiver distress, burden, and depressive symptoms with high acceptability, supporting controlled evaluation and policy consideration of its reimbursement.

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BibTeX
@article{ha2026changes,
  title = {{Changes in Caregiver Burden, Psychological Distress, and Depressive Symptoms Following a Physician-Led Standardized Counseling and Education Program for Caregivers of Patients With Dementia and Mild Cognitive Impairment: A Multicenter Pre-Post Study.}},
  author = {Hee-Jung Ha and Geon Ha Kim and Seong Hye Choi and Min Young Chun and Yun Jeong Hong and Jihye Hwang and Jae-Won Jang and Da Won Jeong and Eun-Joo Kim and Hee-Jin Kim and Ko Woon Kim and Yeshin Kim and Bon D Ku and Eun Ah Lee and Eun Hye Lee and Sun Min Lee and So Young Moon and Yeonsil Moon and Ye Sol Mun and Duk L Na and Haeri Na and Seunghee Na and Jinse Park and Kee Hyung Park and Kun-Woo Park and YongSoo Shim and Dong Won Yang and Jiyoung Yeom and Rayoung Yoo and Bora Yoon and Soo Jin Yoon and Jee Hyang Jeong},
  journal = {Dementia and neurocognitive disorders},
  year = {2026},
  month = oct,
  doi = {10.12779/dnd.2026.25.4.210},
  url = {https://europepmc.org/article/MED/43011264},
  note = {CC BY-NC},
}
RIS
TY  - JOUR
TI  - Changes in Caregiver Burden, Psychological Distress, and Depressive Symptoms Following a Physician-Led Standardized Counseling and Education Program for Caregivers of Patients With Dementia and Mild Cognitive Impairment: A Multicenter Pre-Post Study.
AU  - Hee-Jung Ha
AU  - Geon Ha Kim
AU  - Seong Hye Choi
AU  - Min Young Chun
AU  - Yun Jeong Hong
AU  - Jihye Hwang
AU  - Jae-Won Jang
AU  - Da Won Jeong
AU  - Eun-Joo Kim
AU  - Hee-Jin Kim
AU  - Ko Woon Kim
AU  - Yeshin Kim
AU  - Bon D Ku
AU  - Eun Ah Lee
AU  - Eun Hye Lee
AU  - Sun Min Lee
AU  - So Young Moon
AU  - Yeonsil Moon
AU  - Ye Sol Mun
AU  - Duk L Na
AU  - Haeri Na
AU  - Seunghee Na
AU  - Jinse Park
AU  - Kee Hyung Park
AU  - Kun-Woo Park
AU  - YongSoo Shim
AU  - Dong Won Yang
AU  - Jiyoung Yeom
AU  - Rayoung Yoo
AU  - Bora Yoon
AU  - Soo Jin Yoon
AU  - Jee Hyang Jeong
PY  - 2026
DA  - 2026/10/26
JO  - Dementia and neurocognitive disorders
DO  - 10.12779/dnd.2026.25.4.210
UR  - https://europepmc.org/article/MED/43011264
AB  - Background and purpose  Family caregivers of people with dementia carry psychological burden, yet brief physician-delivered caregiver counseling within routine hospital care is neither standardized nor routinely reimbursed in Korea. We evaluated changes in caregiver distress, burden, and depressive symptoms after a structured, hospital-based counseling and education program delivered by physicians.Methods  This secondary analysis used data from a Korean Dementia Association multicenter pilot project at 25 hospitals. Primary caregivers of patients with mild cognitive impairment or dementia completed a 6-item distress checklist, the 4-item Zarit Burden Interview (ZBI), and the 15-item Short-Form Geriatric Depression Scale (SGDepS) before and within 7 days after a single session (45 minutes). Pre-post changes were tested with Wilcoxon signed-rank tests; baseline-adjusted and multivariable regression models explored characteristics associated with change.Results  Of 210 caregivers, 202 completed both assessments (mean age 59.7 years; 70.3% female; 54.5% spouses). Mean scores decreased from 1.916 to 1.535 for distress, 6.114 to 5.104 for ZBI, and 4.406 to 3.604 for SGDepS (all p<0.001), with reductions in 31.2%, 51.0%, and 44.6% of caregivers, respectively. No patient or caregiver characteristic was associated with the magnitude of change after baseline adjustment. Satisfaction was high (4.3±0.8 of 5) and weakly correlated with greater reductions in distress (ρ=-0.17) and burden (ρ=-0.16).Conclusions  A brief, physician-led caregiver counseling program using standardized materials with tailored module selection, integrated into hospital dementia care was followed by short-term reductions in caregiver distress, burden, and depressive symptoms with high acceptability, supporting controlled evaluation and policy consideration of its reimbursement.
SN  - 1738-1495
SN  - 2384-0757
ER  -