Validation of the French version of the patient-reported outcome measure in pediatric chronic kidney disease (PRO-Kid)
Abstract
Objectives: Children living with chronic kidney disease (CKD) experience a high symptom burden. The PRO-Kid tool is a validated 14-item questionnaire for the assessment of symptom burden in youth aged 8 to 18 years living with CKD. The objective of this study was to evaluate the understandability of the French version of PRO-Kid.
Methods: Participants were a cohort of French-speaking Canadian children aged 8 to 18 years living with CKD stage 3 to 5, including dialysis. Participants were recruited from the Montreal Children's Hospital and the Centre hopitalier universitaire Sainte-Justine (Montreal, Canada). The English version of the PRO-Kid was translated into French and back-translated to English by an accredited translator as well as two French-speaking investigators. Participants were asked to complete the French version of the questionnaire. Cognitive interviews were conducted to evaluate the understandability of the tool and relevance of each questionnaire item, and analyzed using NVivo.
Results: Ten children completed the study, with a median age of 13 years (IQR, 11.7, 15.6). All children reported that the questionnaire was easy to complete. The participants’ feedback revealed that no changes were warranted to the items, although some qualifiers were added to the item Itchiness (Démangeaisons) to improve clarity. Participants found the wording of the scale appropriate and easy to understand.
Conclusion: This study supports content and face validity of the French version of PRO-Kid (8 to 18 years old). This tool can now be implemented into CKD clinics for French-speaking children. It has the potential to improve communication between children with CKD and their health care providers.
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BibTeX
@article{abukasm2026validation,
title = {{Validation of the French version of the patient-reported outcome measure in pediatric chronic kidney disease (PRO-Kid)}},
author = {Karma Abukasm and Banke Oketola and Kimberley Widger and Giuseppe Pascale and Marie-Michele Gaudreault-Tremblay and Jean-Philippe Roy and Allison Dart and Mina Matsuda-Abedini},
journal = {Paediatrics \& Child Health},
year = {2026},
month = jul,
doi = {10.1093/pch/pxag047},
url = {https://doi.org/10.1093/pch/pxag047},
note = {CC BY-NC-ND 4.0},
}
RIS
TY - JOUR
TI - Validation of the French version of the patient-reported outcome measure in pediatric chronic kidney disease (PRO-Kid)
AU - Karma Abukasm
AU - Banke Oketola
AU - Kimberley Widger
AU - Giuseppe Pascale
AU - Marie-Michele Gaudreault-Tremblay
AU - Jean-Philippe Roy
AU - Allison Dart
AU - Mina Matsuda-Abedini
PY - 2026
DA - 2026/07/02
JO - Paediatrics & Child Health
DO - 10.1093/pch/pxag047
UR - https://doi.org/10.1093/pch/pxag047
AB - Objectives: Children living with chronic kidney disease (CKD) experience a high symptom burden. The PRO-Kid tool is a validated 14-item questionnaire for the assessment of symptom burden in youth aged 8 to 18 years living with CKD. The objective of this study was to evaluate the understandability of the French version of PRO-Kid. Methods: Participants were a cohort of French-speaking Canadian children aged 8 to 18 years living with CKD stage 3 to 5, including dialysis. Participants were recruited from the Montreal Children's Hospital and the Centre hopitalier universitaire Sainte-Justine (Montreal, Canada). The English version of the PRO-Kid was translated into French and back-translated to English by an accredited translator as well as two French-speaking investigators. Participants were asked to complete the French version of the questionnaire. Cognitive interviews were conducted to evaluate the understandability of the tool and relevance of each questionnaire item, and analyzed using NVivo. Results: Ten children completed the study, with a median age of 13 years (IQR, 11.7, 15.6). All children reported that the questionnaire was easy to complete. The participants’ feedback revealed that no changes were warranted to the items, although some qualifiers were added to the item Itchiness (Démangeaisons) to improve clarity. Participants found the wording of the scale appropriate and easy to understand. Conclusion: This study supports content and face validity of the French version of PRO-Kid (8 to 18 years old). This tool can now be implemented into CKD clinics for French-speaking children. It has the potential to improve communication between children with CKD and their health care providers.
SN - 1205-7088
SN - 1918-1485
ER -