Development and validation of the booklet “Home Exercise for Children and Adolescents with CharcotMarie-Tooth Disease” Desenvolvimento e validação da cartilha “Exercícios Domiciliares para Crianças e Adolescentes com doença de Charcot-Marie-Tooth”
- 1Universidade de São Paulo, Faculdade de Medicina de Ribeirão Preto, Departamento de Ciências da Saúde, Ribeirão Preto, SP, Brazil.
- 2Universidade de São Paulo, Faculdade de Medicina de Ribeirão Preto, Departamento de Neurociências e Ciências do Comportamento, Ribeirão Preto, SP, Brazil.
Abstract
Objective
To develop a home-based exercise booklet for children and adolescents with CharcotMarie-Tooth disease (CMT) and to validate its content with expert judges and the target audience.Methods
This methodological study, initiated in 2019, had the booklet content developed based on the clinical experience of specialized professionals and the scientific literature. The layout was designed in accordance with recommendations for health education materials. Physiotherapists with clinical experience in child neurology and primary caregivers were included. Eleven expert judges and 15 caregivers were selected for booklet validation. Two different questionnaires were used for content validation and adherence analysis (15 and 45 days after booklet delivery). The Content Validity Index (CVI) was used to evaluate content validity among expert judges, whereas for caregivers, response frequencies were analyzed.Results
The booklet was developed in six sections, including exercises for strengthening, stretching, and balance training. Nine judges responded to the questionnaire, and all aspects assessed in the content validation achieved a minimum CVI of 0.9. Caregivers responded predominantly "agree" or "strongly agree" to all items related to the evaluation of the material. After 15 days, adherence to the proposed exercises was 53.0%, increasing to 66.0% at 45 days.Conclusions
The booklet proved to be a useful and validated tool to support the physiotherapeutic management of children and adolescents with CMT.
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BibTeX
@article{cardoso2026development,
title = {{Development and validation of the booklet “Home Exercise for Children and Adolescents with CharcotMarie-Tooth Disease” Desenvolvimento e validação da cartilha “Exercícios Domiciliares para Crianças e Adolescentes com doença de Charcot-Marie-Tooth”}},
author = {Juliana Cardoso and Bruna Rodrigues Jordão and Wilson Marques Júnior and Cyntia Rogean de Jesus Alves de Baptista and Ana Claudia Mattiello-Sverzut},
journal = {Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo},
year = {2026},
month = oct,
doi = {10.1590/1984-0462/2026/44/2026002},
url = {https://europepmc.org/article/PMC/PMC13719125},
note = {CC BY},
}
RIS
TY - JOUR
TI - Development and validation of the booklet “Home Exercise for Children and Adolescents with CharcotMarie-Tooth Disease” Desenvolvimento e validação da cartilha “Exercícios Domiciliares para Crianças e Adolescentes com doença de Charcot-Marie-Tooth”
AU - Juliana Cardoso
AU - Bruna Rodrigues Jordão
AU - Wilson Marques Júnior
AU - Cyntia Rogean de Jesus Alves de Baptista
AU - Ana Claudia Mattiello-Sverzut
PY - 2026
DA - 2026/10/26
JO - Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo
DO - 10.1590/1984-0462/2026/44/2026002
UR - https://europepmc.org/article/PMC/PMC13719125
AB - Objective To develop a home-based exercise booklet for children and adolescents with CharcotMarie-Tooth disease (CMT) and to validate its content with expert judges and the target audience.Methods This methodological study, initiated in 2019, had the booklet content developed based on the clinical experience of specialized professionals and the scientific literature. The layout was designed in accordance with recommendations for health education materials. Physiotherapists with clinical experience in child neurology and primary caregivers were included. Eleven expert judges and 15 caregivers were selected for booklet validation. Two different questionnaires were used for content validation and adherence analysis (15 and 45 days after booklet delivery). The Content Validity Index (CVI) was used to evaluate content validity among expert judges, whereas for caregivers, response frequencies were analyzed.Results The booklet was developed in six sections, including exercises for strengthening, stretching, and balance training. Nine judges responded to the questionnaire, and all aspects assessed in the content validation achieved a minimum CVI of 0.9. Caregivers responded predominantly "agree" or "strongly agree" to all items related to the evaluation of the material. After 15 days, adherence to the proposed exercises was 53.0%, increasing to 66.0% at 45 days.Conclusions The booklet proved to be a useful and validated tool to support the physiotherapeutic management of children and adolescents with CMT.
SN - 0103-0582
SN - 1984-0462
ER -