Design and Rationale of the Niigata Cardiovascular Disease Registry Using Linked Administrative and Clinical Data (NiCARDIA).

@article{fujiki2026design,
  title = {{Design and Rationale of the Niigata Cardiovascular Disease Registry Using Linked Administrative and Clinical Data (NiCARDIA).}},
  author = {Shinya Fujiki and Hayao Ikesugi and Akari Hagiwara and Minoru Takahashi and Tsuyoshi Yoshida and Kazuyoshi Takahashi and Asako Tomii and Takashi Saikawa and Yasushi Miyakita and Yuichi Nakamura and Makoto Tomita and Toshio Yamaguchi and Keisuke Suzuki and Shunsuke Imai and Toru Ida and Katsuharu Hatada and Satoru Abe and Masataka Arita and Ryohei Sakai and Hiromi Kayamori and Tsugumi Takayama and Takeshi Kashimura and Yiwei Ling and Shujiro Okuda and Haruna Miyazawa and Takahiro Tanaka and Hirohito Sone and Takayuki Inomata},
  journal = {Circulation reports},
  year = {2026},
  month = sep,
  doi = {10.1253/circrep.cr-26-0029},
  url = {https://europepmc.org/article/MED/43011238},
  note = {CC BY-NC-ND},
}

TY  - JOUR
TI  - Design and Rationale of the Niigata Cardiovascular Disease Registry Using Linked Administrative and Clinical Data (NiCARDIA).
AU  - Shinya Fujiki
AU  - Hayao Ikesugi
AU  - Akari Hagiwara
AU  - Minoru Takahashi
AU  - Tsuyoshi Yoshida
AU  - Kazuyoshi Takahashi
AU  - Asako Tomii
AU  - Takashi Saikawa
AU  - Yasushi Miyakita
AU  - Yuichi Nakamura
AU  - Makoto Tomita
AU  - Toshio Yamaguchi
AU  - Keisuke Suzuki
AU  - Shunsuke Imai
AU  - Toru Ida
AU  - Katsuharu Hatada
AU  - Satoru Abe
AU  - Masataka Arita
AU  - Ryohei Sakai
AU  - Hiromi Kayamori
AU  - Tsugumi Takayama
AU  - Takeshi Kashimura
AU  - Yiwei Ling
AU  - Shujiro Okuda
AU  - Haruna Miyazawa
AU  - Takahiro Tanaka
AU  - Hirohito Sone
AU  - Takayuki Inomata
PY  - 2026
DA  - 2026/09/04
JO  - Circulation reports
DO  - 10.1253/circrep.cr-26-0029
UR  - https://europepmc.org/article/MED/43011238
AB  - Background  As populations age, cardiovascular disease (CVD) increasingly affects functional independence, an issue of growing importance among older adults. However, long-term trajectories of functional decline in patients receiving contemporary CVD care remain poorly characterized, so the Niigata Cardiovascular Disease Registry using Health Insurance Claims (NiCARDIA) was established to address this gap by integrating hospital-based clinical data with administrative datasets through a prefecture-wide data-sharing platform.Methods and results  NiCARDIA is a multicenter, prospective observational cohort enrolling 8,500 adults hospitalized with CVD at 16 hospitals across Niigata Prefecture, Japan. Baseline data include demographics, biomarkers, echocardiographic findings, and other clinical variables. Eligible participants are insured under Japan's public health insurance schemes, enabling deterministic linkage to longitudinal medical, long-term care, and health check-up data. Administrative datasets will be updated every 6-12 months through to 2045. The primary outcome is longitudinal change in functional independence assessed by certified long-term care-need levels. Secondary outcomes include death, hospitalizations, treatment patterns, and prediction of functional decline.Conclusions  By linking detailed clinical data with population-level administrative datasets, NiCARDIA will enable comprehensive evaluation of long-term functional trajectories and their clinical and social determinants in contemporary CVD patients.
SN  - 2434-0790
ER  -