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Peer-reviewedCC BYDrug and alcohol review

Recommendations to Enhance Engagement in Perinatal Research With People Who Inject Drugs.

  • Alison D Marshall1,2
  • Grace K Burton-McKeich1
  • Natalie Taylor3
  • Kristen Overton4,5
  • Antonia W Shand6,7
  • Alys Havard8
  • Danielle M Russell1
8 affiliations
  1. 1The Kirby Institute, University of New South Wales, Sydney, Australia.
  2. 2Centre for Social Research in Health, University of New South Wales, Sydney, Australia.
  3. 3Implementation to Impact (i2i), School of Population Health, University of New South Wales, Sydney, Australia.
  4. 4School of Clinical Medicine, Faculty of Medicine and Health, University of New South Wales, Sydney, Australia.
  5. 5Department of Infectious Diseases, Prince of Wales Hospital, Sydney, Australia.
  6. 6Children's Hospital at Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
  7. 7Department of Maternal Fetal Medicine, Royal Hospital for Women, Sydney, Australia.
  8. 8National Drug and Alcohol Research Centre, University of New South Wales, Sydney, Australia.
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Abstract

Women of reproductive age are significantly less likely than men to initiate hepatitis C virus (HCV) treatment, with the lowest uptake among women with children. Women who inject drugs who have children are a highly marginalised and stigmatised population who experience inequitable access to healthcare and poorer health outcomes. In the BUMP-C qualitative study-Bridging Unified Management of Pregnancy in hepatitis C care-we sought to investigate current HCV care pathways and perceptions of HCV management during pregnancy among women who inject drugs. During this study, several lessons emerged from both the challenges and successes in engaging with this population. The aim of this commentary is to outline key recommendations for optimally engaging women who inject drugs in perinatal research. These recommendations include building trust with research participants, promoting strategies for research flexibility and seeking and valuing community and lived experience. The voices of women who inject drugs, often neglected in this space, must be prioritised to improve health outcomes for them and their children.

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Cite

BibTeXRIS
BibTeX
@article{marshall2026recommendations,
  title = {{Recommendations to Enhance Engagement in Perinatal Research With People Who Inject Drugs.}},
  author = {Alison D Marshall and Grace K Burton-McKeich and Natalie Taylor and Kristen Overton and Antonia W Shand and Alys Havard and Danielle M Russell},
  journal = {Drug and alcohol review},
  year = {2026},
  month = oct,
  doi = {10.1111/dar.70283},
  url = {https://europepmc.org/article/MED/42906909},
  note = {CC BY},
}
RIS
TY  - JOUR
TI  - Recommendations to Enhance Engagement in Perinatal Research With People Who Inject Drugs.
AU  - Alison D Marshall
AU  - Grace K Burton-McKeich
AU  - Natalie Taylor
AU  - Kristen Overton
AU  - Antonia W Shand
AU  - Alys Havard
AU  - Danielle M Russell
PY  - 2026
DA  - 2026/10/30
JO  - Drug and alcohol review
DO  - 10.1111/dar.70283
UR  - https://europepmc.org/article/MED/42906909
AB  - Women of reproductive age are significantly less likely than men to initiate hepatitis C virus (HCV) treatment, with the lowest uptake among women with children. Women who inject drugs who have children are a highly marginalised and stigmatised population who experience inequitable access to healthcare and poorer health outcomes. In the BUMP-C qualitative study-Bridging Unified Management of Pregnancy in hepatitis C care-we sought to investigate current HCV care pathways and perceptions of HCV management during pregnancy among women who inject drugs. During this study, several lessons emerged from both the challenges and successes in engaging with this population. The aim of this commentary is to outline key recommendations for optimally engaging women who inject drugs in perinatal research. These recommendations include building trust with research participants, promoting strategies for research flexibility and seeking and valuing community and lived experience. The voices of women who inject drugs, often neglected in this space, must be prioritised to improve health outcomes for them and their children.
SN  - 0959-5236
SN  - 1465-3362
ER  -